International Alliances and Partnerships
Exposure to childhood cancer programmes, initiatives and organisations around the world has brought many benefits and ensures that CHOC stays on par with international developments and trends. We have learnt much from others, and we are also making significant contributions by modeling great programmes and raising awareness of challenges that children and parents face in middle and low income countries.
Since the establishment of Childhood Cancer International (CCI), formerly the International Confederation of Childhood Cancer Parent Organisations (ICCCPO), CHOC has been an active member. Through this connection, CHOC has had access to information and new developments in diagnosis, treatment and care; as well as being an integral part of an international community that has grown to 171 plus parent and childhood cancer organisations from 88 countries.
Since its founding, and starting with our founding member Sadie Cutland, CHOC has almost always had a representative serving on the CCI (international) Board. In 2016, in recognition of CHOC’s impact and tremendous capacity, CCI asked CHOC to be an Anchor Organisation for Africa to help develop and build capacity in other childhood cancer organisations on the continent. We recently sponsored the first of its kind, CCI Africa Regional Conference with delegates from various African countries including the President of CCI. CHOC CEO, Carl Queiros was appointed as the chairman of the Childhood Cancer International (CCI) Africa Regional Committee. Under his leadership we are certainly looking forward to developing childhood cancer programmes and capacity in Africa.
International Society of Paediatric Oncology
In addition to its extensive health professional membership, the International Society of Paediatric Oncology (SIOP) works in partnership with Childhood Cancer International. The two organisations arrange regular continental and global conferences and meetings, as well as collaborate on a number of issues and initiatives relating to paediatric oncology / childhood cancer.
Through belonging to CCI, and through its leaders, CHOC is a member of SIOP and has been actively involved in the SIOP/CCI conferences throughout the years, including co-hosting some. South Africa hosted the African SIOP/CCI meeting in Sun City in the late 90s and then the global 47th annual SIOP Congress in Cape Town in October 2015. (This was the first time the Congress was held in a sub-Saharan country.)
Apart from our participation in CCI, SIOP and their conferences, CHOC also assisted with funding towards scholarships and stipends to enable doctors, nurses, survivors and parents from Africa to attend conferences and trainings. In addition CHOC has hosted or actively participated in other CCI and SIOP conferences such survivors days, global research and African workshops.
This is a group formulated to create a forum that will enable generalist and specialist stakeholders to collaborate in the ongoing planning and development of excellent integrated and coordinated palliative care services to meet the needs of patients, their families and caregivers. CHOC as one of many organisations worked together on the Policy Framework and Strategy for Palliative Care for South Africa which was approved by The National Health Council in 2017.
South African Children’s Cancer Study Group
The South African Children’s Cancer Study Group (SACCSG) was established in 1987, with membership open to professionals involved in the study or practice of paediatric oncology. In addition to practicing paediatric oncologists, members include paediatric surgeons, radiation oncologists, ophthalmologists, neurosurgeons, pathologists, radiologists and dieticians.
As one of the SACCSG’s strategic partners in civil society, CHOC provides direct support to the paediatric oncology units and provides funding for the maintenance of the South African Children’s Tumour Registry (SACTR). CHOC and the SACCSG collaborate on a number of awareness and advocacy issues.
Childhood Cancer Network SA (CCN SA)
The Childhood Cancer Network SA (CCN SA) is a multi-stakeholder group of childhood cancer organisations brought together to establish a network that seeks to collaborate, co-ordinate and advocate on behalf of childhood cancer and life-threatening blood disorders (LTBD) in South Africa. Many organisations work with children with cancer. A few, like CHOC, provide practical and emotional support, while most others provide additional support and benefits. For example, Reach for a Dream enables cancer patients to achieve their dreams, while Just Footprints Foundation takes them camping (see below for more detail). By coordinating and collaborating we can be sure that children and teens get the full spectrum of support they need and benefits they can get (while simultaneously avoiding duplication of support and services). CCNSA also promotes the cause of childhood cancer and helps protect the rights of these children and teens.
The Cancer Alliance is a collective group of cancer non-profit organisations (NGO’s) and cancer advocates brought together under a common mandate which is to provide a platform of collaboration for cancer civil society organisations and NGO’s to speak with one voice, so as to bring positive change for all South African adults and children affected by cancer. Dr Nonkululeko Boikhutso, a childhood cancer survivor, represents CHOC and childhood cancer on the Cancer Alliance Exco.
South African Non-Communicable Disease Alliance (NCD SA)
The mission of the NCD Alliance is to combat the NCD epidemic by putting health at the centre of all policies. Founded in 2009, the NCD Alliance is a unique civil society network uniting 2,000 civil society organisations in more than 170 countries. The South African Non-Communicable Diseases Alliance (NCD SA) was formed on 19 July 2013 as a response to the epidemic of NCDs in South Africa. CHOC is part of the NCD SA Alliance and advocates for childhood cancer as a non-communicable disease.
Just Footprints Foundation
Just Footprints Foundation (JFF) is creating a unique experience for children with life-threatening illnesses, at no cost, at various campsites in the breathtaking beautiful places of South Africa, including the African bush. It’s an encounter that can profoundly change a life, creating a depth of spiritual awareness that brings peace and serenity, even to young children.
Reach for a Dream
Reach for a Dream’s (R4AD) purpose is to encourage children to use their dreams to fight life-threatening illnesses. In partnership with CHOC, R4AD’s vision is to continue giving hope to children fighting life-threatening illnesses through the fulfillment of their dreams, and to further help as many children facing these illnesses though national projects such as Camp Sunshine, Queen For A Day, Captain Courage, Show You Care Send A Bear and Jabulani Kingdom Hospital entertaining projects that all function on an ongoing basis
Since 1987 the White River Rotarians have been hosting Camp Quality entertaining around 40 cancer children each year. The purpose of the camp is to provide the kids with excitement, adventure and a fun time. Activities include: Motorcycle/vintage car rides, Areoplane flips, swimming, visiting chimpanzee and elephant sanctuaries, t-shirt painting, movies, jumping castles and a variety of games.