Together, we created hope


Flip Flop Day 2023

Thank you South Africa for being Flip’n awesome!

While childhood cancer may not affect everyone, one thing is for certain – there are many brave little children or teenagers fighting daily against the disease.

But they are never alone. These courageous soldiers will always have the support, love, and care from those around them, even if it is through a donation from a stranger whom they will never meet.

Well done to Catherine Rall who won our competition with FlySafair. She has won a return flight within South Africa! 

The Courier Guy had recently partnered with us to take the pressure off our courier fees for all the stickers that were bought online, providing an exceptional delivery service at no cost.

Thank you to our unbelievable partners, PNA and Tekkie TownTwo brands who fit in so well with CHOC. We thank you both for all your efforts in getting Flip Flop Day into over 500 stores combined country wide. We would like to pay tribute to each of your staff members, we know that putting up the posters, handing out the flyers and creating awareness is no easy task and you have both taken it on with such enthusiasm!

Corporates, small businesses, ladies and gents, boys and girls – we all did this together by stepping out with love and support for these amazing kids for them to see a brighter tomorrow.

We thank you South Africa and all of our partners for believing in CHOC and the work that we do. We look forward to making Flip Flop Day an even bigger success next year!


 

CHOC joins the St Jude Children’s Research Hospital Global Alliance

We share the belief that every child, everywhere deserves the chance to live regardless of race, religion, or the ability to pay for treatment.

CHOC Childhood Cancer Foundation SA is humbled to have been chosen to join one of the most auspicious global alliances,  St. Jude Children’s Research Hospital Global Alliance who supports children undergoing cancer treatment.  This accolade is testimony to the paediatric oncologists and medical fraternity, the South African Department of Health, CHOC employees, volunteers, and donors who all come together to give these families a chance to overcome childhood cancer.

St. Jude Children’s Research Hospital is one of the largest, most respected paediatric cancer research hospitals in the world and is non-profit. St. Jude treats about 8,600 patients a year including patients from around the world and no patient ever receives a bill!

Over the last 60 years, their research and treatments have helped to raise paediatric cancer survival rates in the US from 20% to 80% and even 94% for some types of cancer. St. Jude treats all patients regardless of race, religion or the ability to pay.

Hedley Lewis, CHOC CEO said, “For a non-profit organisation on the tip of Africa, this is a dream come true. We trust that this partnership, dedicated to the shared vision of improving the quality of healthcare delivery will  increase the survival rates of children with cancer and blood disorders, not only in South Africa but worldwide”.


 

CHOC receives accolade of “Best NGO”

CSI Legacy Awards held on the 2nd of March 2023

The CSI Legacy Awards 2023, is a prestigious event that celebrates corporate social investment, in recognising the contributions of industry leaders towards creating a better society.

This event was  attended by prominent figures in government (the Honourable Deputy Minister for Social Development,  Ms Hendrietta Bogopane-Zulu), business (Heads of Investec, Standard Bank, Oceana Group),  Academia (Head of Wits Business School, Professor Maurice Radebe), and civil society. The awards were given to those who went above and beyond to make a difference in their communities through corporate social investment initiatives.

Awards were presented across several categories, including Best Social Entrepreneur, Best Corporate, Best NGO, Best Rising NGO, and Best CEO. 

Hedley Lewis, CHOC CEO, said, “This award that I had the privilege to receive on behalf of CHOC is a testimony to the incredible CHOC staff, volunteers, Board and Exco; as well as the medical fraternity and our donors that stand by our side to reach for the stars”.

I would like to thank each of you for voting for CHOC and believing in the work that we do.  I must say though, even if we were not to be chosen as the winner, being recognised alone should have been a huge achievement;  especially knowing that we are doing the best we were called to do for the children and teens with cancer and life-threatening blood disorders and their families.

 

Update from our Awareness Training and Education team

Collaboration with IFRC

Our partnership with the International Federation of the Red Cross SA is getting stronger by the day. Last November, we trained 17 of their Risk Communication and Community Engagement (RCCE) officers in the Eastern Cape. This was the second group of volunteers that we trained.  We wish to express our gratitude to the IFRC organising team, Linda Nene and Faith Dube for their vision and leadership in this partnership. What is encouraging is that the volunteers are beginning to identify and refer new cases in the communities.

Mogale City Refresher

In January we organised a refresher training for the CHOC Community Messengers based in Mogale City. These passionate and dedicated volunteers visit local clinics, ECD Centres, Community and Faith Based Organisation to spread the message that early detection saves the lives of children and teens with cancer. During the refresher training we reiterated the knowledge of the Siluan Early Warning Signs of childhood cancer ensuring that they take accurate messages to the communities.

Traditional Health Organisation Training

We were privileged to train Traditional Health Practitioners (THP) of the Traditional Healers Organisation (THO) of South Africa in Johannesburg.  These Field Workers and Provincial Leads came from different parts of the country such as Limpopo, Northwest, Gauteng, KZN and Mpumalanga and will share the message of the Siluan Early Warning Signs of childhood cancer in their communities. The Director for African Traditional Medicine from the National Department of Health, Mr Bruce Mbedzi, closed the training by giving an update on the collaboration between the National Department of Health and the THPs; as well as the policy framework for the THPs in South Africa.

Granny Sienna’s Journey

On the 5th of July 2010, Caleb Opperman was born in Calvinia in the Northern Cape. The family was shattered when they got the news that he was born with meningitis. His grandmother, Sienna Opperman said that she was shattered, afraid and would  not accept that her  grandson would pass away. The doctors fought for his life and after a week he recovered and granny Sienna then knew that he had a fighting spirit.  Caleb grew up to be a loving, gentle and a persistent boy. “When Caleb wants to achieve something, nothing can stop him, even when I say no, he would just hold my face up against his, rub his nose gently on mine and got his way” added Sienna.

In May 2022, on a school excursion to Cape Town, Caleb started sweating profusely, and was rushed to the pharmacy to find medicine to stop the sweating. The pharmacist recommended that they see a doctor. On their way to the doctor, the sweating stopped, Caleb felt better and they  decided not to proceed.

A month later, Caleb accidently stepped on a chicken bone which cut his foot and was treated immediately.  A few days later, Caleb’s heart started to beat extremely fast and he was rushed to hospital where they were told that his blood pressure was too high. He had an infection and needed to go to Upington hospital where he was treated in the ICU for a heart condition.

Sienna and Caleb then had to go to Bloemfontein for a biopsy. After Bloemfontein, Caleb returned home to Calvinia,  was hospitalised again and later transferred to Kimberley Hospital where Caleb was diagnosed with a rare form of cancer namely paraganglioma. Paraganglioma is a type of neuroendocrine tumour that forms near certain blood vessels and nerves outside of the adrenal glands.

“I remember crying when the doctors told me this, because cancer was not something foreign to us. My sister and my daughter battled cancer and now it was my grandson,” remembered Sienna.

Caleb said that when he was told that he had cancer, he was bit sad and didn’t understand why he would get cancer at such a young age.  “I had to believe that I could beat it, because I had to be strong for my ouma.” said the brave 13-year-old Caleb.

In December 2022, Caleb started his chemotherapy where he assured the doctors that he would do his best to be strong, because he is a fighter. The doctors then referred Caleb and Sienna to Keitumetse Malefandleleni, the Regional Programme Co-ordinator for CHOC Childhood Cancer Foundation SA in the Free State & Kalahari region.  Keitumetse was there to help them with all their needs while they attended treatment.

In February 2023, Caleb and Sienna were referred to the Chris Hani Baragwanath Academic Hospital in Gauteng South where Caleb had to undergo an operation. Keitumetse made sure that their travel arrangements were made and that they would be supported and cared for by the CHOC family in Gauteng. During their stay in Gauteng, they stayed in CHOC House Diepkloof. “It’s nice at the CHOC House, it is safe, it is clean, and the people are  so friendly.  I have also made new friends,” said Caleb.

“CHOC house is like my own home. Caleb could play outside with his friends, and I knew that nothing and no one would harm him. I felt safe and cared for”, added Sienna.

Caleb remains a strong and respectful young man that is obsessed with cars, debating, playing with his friends and cousins and absolutely adores his grandmother.

 

Do you suspect a child or a teenager who may have cancer or a life-threatening blood disorder? Refer them here
Upcoming Events

Pretoria High Tea

Tea with friends for a good cause – join us at our annual High Tea on the 6th of May 2023 at La Vie Lente Bistro in Pretoria.

R350 per person
Dress code: Smart Casual
Table bookings of 10 available.

RSVP by Tuesday, 25th April 2023 or 012 323 3490

Saturday, 6 May 2023 
Register here

Johannesburg High Tea

Join CHOC Gauteng South for a High Tea on 27 May 2023 at the Four Seasons Hotel, The Westcliff.

R550 per person

Table bookings of 10 available

RSVP by Thursday, 18 May 2023

Saturday, 20 November 2023
Register Here

Western Cape Golf Day

Join us for a day on the greens along the coast at Milnerton Golf Club, on the 1st of September 2023, for a Charity Golf Day held by Little Hands Promotions.

Registration opens 9 a.m.
Tee-off between 11 a.m. and 1 p.m.

Entry fee is R1 200 per individual player or R4 800 per team.

Close date for entries is 15 August 2023.

Friday 1 September 2023
Register here

You too can make a difference!

Without CHOC, many children – particularly those from low-income households living far from treatment centres – would not adhere to the necessary but arduous treatment path.

CHOC has a proven ability to deliver sustainable solutions effectively and is an established brand endorsed by specialists. Our reporting on expenditure is detailed, accurate and we provide audited financial statements annually. We have demonstrated visible growth and have proved that we deliver results.

To make a difference in the lives of our beneficiaries, click here

To spread hope, follow us on the social media platforms below

Our mailing address is:
CHOC Childhood Cancer Foundation
45 Homestead Road
The Avenues Office Park

Syringa Building
Rivonia
2128

Email:
[email protected]

Tel:
086 111 3500

Copyright © 2023, CHOC Childhood Cancer Foundation SA. All rights reserved.

Read our Privacy Policy here.

International Childhood Cancer Day – 15 February

Pretoria: South Africa will tomorrow (Wednesday) join the global community to observe the International Childhood Cancer Day to raise awareness and improve understanding of childhood cancer, which remains one of the leading causes of death in high-income countries amongst children under the age of 15.

Although childhood cancer is relatively rare, the incidence rate has been increasing which may be due to awareness. Almost 400 000 children are diagnosed annually, and South Africa accounts for almost 1500 of this global number. Many children with cancer in low-and-middle-income countries are either not diagnosed on time or referred too late for curative care. One of the contributing factors for this, is a lack of awareness and knowledge of the early warning signs.

The most common types of childhood cancers include leukaemia, lymphoma, brain, kidney and eye tumours.

The Department of Health working together with the South African Children’s Cancer Study Group and CHOC Childhood Cancer Foundation South Africa have initiated a programme to disseminate information to empower the communities with knowledge about the early warning signs and the unique and complex challenges faced by children with cancer and their families. They also endeavour to offer support all children during their arduous journey.

The World Health Organization, governments, civil society organisations and health care workers are in partnership to meet the WHO Global Initiative for Childhood Cancer (GICC) goals of a 60% overall survival in children and adolescents with cancer in low-and middle-income countries by 2030.

International Childhood Cancer Day is observed annually across the world on February 15, and the 2023 campaign is observed under the theme: #ThroughTheirHands, which focusses on paying tribute to the families and caregivers, and the positive impact they have on the lives of children and adolescents living with cancer.

The community, parents and caregivers are urged to familiarise themselves with the Siluan Early Warning Signs (https://choc.org.za/childhood-cancer-early-warning-signs/).

St. Jude Global Partnership

CHOC Childhood Cancer Foundation SA is humbled to have been chosen to join one of the most auspicious global alliances supporting children who are undergoing cancer treatment, St. Jude Children’s Research Hospital Global Alliance. This Accolade is testimony to the paediatric oncologists and medical fraternity, the South African Department of Health, our employees, volunteers, and donors who all come together to give these families the chance to overcome childhood cancer.

As St. Jude Children’s Research Hospital Global Alliance recognises CHOC and becomes part of our family it means that we share the belief that every child, everywhere deserves the chance to live regardless of race, religion, or the ability to pay for treatment.

St. Jude Children’s Research Hospital is one of the largest, most respected paediatric cancer research hospitals in the world and is non-profit. No family receives a bill from the hospital, ever. St. Jude treats about 8,600 patients a year including patients from around the world.

Over the last 60 years, their research and treatments have helped raise paediatric cancer survival rates in the US from 20% to 80% and even 94% for some types of cancer. St. Jude treats all patients regardless of race, religion or the ability to pay. Globally 400,000 children (0-19 years) are diagnosed with cancer each year of which roughly 1000 are South African.

We are a Non-Profit Organisation and rely on funds donated by individuals, companies, trusts and foundations. We also host a number of fundraising projects and events to accrue further funding. Without CHOC, many children – particularly those from low-income households living far from treatment centres – would not adhere to the necessary but arduous treatment path. CHOC has a proven ability to deliver sustainable solutions effectively and is an established brand endorsed by specialists. Our reporting on expenditure is detailed, accurate and we provide audited financial statements annually. We have demonstrated visible growth and have proved that we deliver results. To donate to CHOC please click here.

Hedley Lewis comments, CHOC CEO has said “For a non-profit organisation on the tip of Africa, this is a dream come true. We trust that this partnership is dedicated to the shared vision of improving the quality of healthcare delivery and increasing survival rates of children with cancer and blood disorders, not only in South Africa but worldwide”.

SA Flip Flop Day 2023

CHOC Childhood Cancer Foundation SA Flip Flop Day 2023 – Get Your Flip Flops Out!

Did you know, in some way or form, each and every single one of us is affected by childhood cancer? While it may not affect you directly in some cases – it could be someone close to you – a beloved family member or the child of a close friend or colleague. But one thing is for certain – we all know of one brave little child or teenager fighting against it every day.

But they’re never alone – these courageous soldiers will always have the support, love and strength from those around them, even if it’s through a donation from a stranger who they will never meet.

CHOC Childhood Cancer Foundation South Africa is an advocate for the fight against this life-threatening illness – offering psychosocial, emotional and patient facing support to families and children and teenagers diagnosed with cancer.

Made up of passionate, caring, committed and dedicated staff and volunteers, CHOC’s one goal is simple – to save lives through early detection, and to enable us all to stand up, stand strong and stand together to support these fearless little warriors.

Our 4th Annual Flip Flop Day Is Almost Here!

We’re not really about counting the days here – we’re more about making each and every day count. CHOC is about using HOPE as the medicine for all diseases.

And so, Flip Flop Day and Flippie have stepped up to the forefront to get every South African – young or old, the corporate or casual, the beach-side dweller or the city slicker – to get up and literally wear their heart on their soles on Friday the 17th of February 2023!

He’s told us to pass this message to you, “Rise up and join us! Kick off those shoes and let your toes be free on Friday, the 17th of February 2023 by showing your support and love for our warriors by flipping on a pair of flip flops. Let’s show this life-threatening disease that we South Africans are a force to be reckoned with!

“I’m ready to show my support! Where can I get my Flip Flop Day sticker?”

As the needs of the children, teenagers and their families increase and our desire to enhance our augmentation of the medical fraternity treatment continues, we are aiming to raise even more than R2 MILLION last year!

Partnered for greatness, you can get your sticker for only R10 at your nearest PNA, Tekkie Town, or by visiting www.choc.org.za or popping into your nearest CHOC region.

Hedley Lewis, CHOC CEO, comments “your small donation will make the biggest difference in the lives of these valiant little ones and their families. With your R10, you are not only helping CHOC fund their Core Programmes, but you’ll also be giving the gift of hope, solidarity and support to anyone and everyone fighting against cancer”.

So, are you ready to be flip’n awesome this Flip Flop Day? Ready to flip on your favourite pair of flip flops and rock out with your toes out?

Corporate companies, small businesses, ladies and gents – let’s do this together – let’s help pave the way with love and support for these amazing kids to see a brighter tomorrow.

Childhood Cancer Awareness Month

South Africa joins the rest of the global community to commemorate childhood cancer awareness month in September to raise awareness about children`s cancers to reduce child mortality rate and highlight the global burden of childhood cancers.

 

Although, children`s cancers are not always treated like adult cancers, they are highly curable with higher survival rates in high-income countries, while the situation is different in low-middle-income countries.

 

Delayed diagnosis together with too few specially trained health specialists, such as doctors and nurses, contribute to low survival rates. The 2022 Childhood Cancer Awareness Month is commemorated under the theme: “Better Survival is achievable #throughyourhands” which serves as a clarion call for governments, non-government, and the private sector to work together to achieve at least 60% survival in low-middle-income countries and to reduce suffering of all children with cancer by 2030 worldwide.

 

Globally, childhood and adolescent cancer is threatening to overtake infectious diseases, as one of the highest causes of disease-related mortality in children. Despite being relatively rare, in high-income countries childhood cancer is the second most common cause of death in children aged 5 to 14 years, after accidents, whilst in Africa it does not make it into the top 10 common causes.

 

The month of September is considered a month of hope for better treatment outcomes, for a brighter and healthier future for young cancer patients.

 

Professor Gita Naidu, Chair of South African Children’s Cancer Study Group says, “Early diagnosis and availability of basic childhood cancer drugs will enable us to meet the WHO 2030 goal of an overall survival of 60% in low-middle-income countries. Childhood cancer can be cured”.

 

According to Dr Kibachio Joseph Mwangi, Medical Officer responsible for Non-Communicable Diseases at the  World Health Organization of South Africa, “unlike in adults where screening has a huge impact on early cancer diagnosis treatment and outcome, awareness of childhood cancer symptoms by families and primary care providers, accurate and timely clinical evaluation as well as accurate diagnosis, staging and access to prompt treatment will go a long way to improve our survival rate in children with cancer”.  Early detection of childhood cancer affords early diagnosis enabling a better chance of being cured and an increase in the survival rate.

 

Sandhya Singh, Acting Chief Director: NCD Cluster, NDoH stresses the importance of meaningful engagement with all stakeholders in particular with children and teenagers living with cancer as well as their parents or caregivers to better understand their lived experiences and these impact on their access to care as well as the quality of survival.

 

Hedley Lewis, CHOC CEO says, “you have the power to make a change, no matter who you are, let’s be a voice for our children and teenagers this International Childhood Cancer Awareness Month! Our children deserve to live a full life, and we have the power to give them the chance to do so”.

 

The survival rate of SA has gradually increased over the past few years to about 55%, though it is still well below the rate of developed countries of 80 to 90%, and the WHO GICC 2030 goal of at least a 60% survival rate. Statistics indicate that countries may be missing some children and teens who are either never diagnosed, misdiagnosed or unreported. A key factor is the lack of knowledge about the early warnings signs of childhood cancer which are accessible in various platforms including CHOC website

 

Members of the public are urged to be the change for those going through the childhood cancer journey and for those who have been newly diagnosed. There are many ways people can get involved this September, in order to make a difference in the lives of children and teenagers who are on the cancer recovery journey.

 

For more information and media enquiries, please contact:

 

Mr Foster Mohale

Health Departmental Spokesperson

0724323792

[email protected]

Hedley Lewis

CHOC CEO

0829947655

[email protected]

 

 

Lancet Laboratories in Collaboration with CHOC Childhood Cancer Foundation

Lancet Laboratories in Collaboration with CHOC Childhood Cancer Foundation SA showing that #LancetLabCares

Sandile Sihlaba (Group Chief Marketing Officer) at Lancet Laboratories, “we pride ourselves in providing laboratory services with diagnostic excellence and being at the forefront of diagnostic innovation.”

Lancet Laboratories recognises the importance of engaging and interacting with the communities we operate in, as part of our Corporate Social Responsibility and Investment. This is done through our various #LancetLabCares initiatives. We are grateful to take part in initiatives that allow us to give back and be in unity with the communities.

Lancet Laboratories supports various NPO’s nationally and CHOC Childhood Cancer Foundation South Africa is one of them that speaks to our motto which is #LancetLabCares so this ongoing relationship with CHOC has now grown nationally.

Lancet Laboratories and CHOC has embarked on a national initiative to appreciate and celebrate Nurses at the 16 Paediatric Oncology units, CHOC augments treatment through its Comprehensive Child and Family Support Programme.  Five hundred nurses in paediatric oncology were gifted with pouches and pens in acknowledgement of their vital contribution to children and teens with cancer and life-threatening blood disorder.

“CHOC is privileged to partner with Lancet Laboratories to pay tribute to the nurses in Paediatric Oncology Units across the country. Individuals who stand side by side with patients, 24 hours a day with passion and love. I would like to pay tribute to Lancet Labs who proudly integrate corporate values to support South Africa” Hedley Lewis, CEO of CHOC Childhood Cancer Foundation SA.

CHOC Childhood Cancer Foundation SA receive their first Solar System

CHOC Childhood Cancer Foundation SA receive their first Solar System!

We have officially announced the first clean renewable energy project of a CHOC accommodation facility which was made possible by the generous financial support of the Australian High Commission. Based close to the specialised paediatric oncology treatment centres, our accommodation facilities are a home-away-from-home where the children and teenagers who are undergoing treatment for childhood cancer or a life-threatening blood disorder can come and stay with their parents or caregivers. These houses provide families with access to the healthcare facilities for treatment which would not have been possible due to distance or financial restraints.  The accommodation facilities provide a therapeutic environment that helps patients and parents/caregivers maintain a positive attitude during the cancer journey.  All meals are provided, as well as transport to and from the hospitals. It is a clean and safe environment with caring and understanding staff, a place where new friendships are formed.

Hedley Lewis, CHOC CEO, was joined by Her Excellency, Gita Kamath from The Australian High Commission as well as MMC Health Cllr Rina Marx (City of Tshwane) and MMC Community & Social Development Cllr Peggy de Bruin (City of Tshwane). It was an intimate but prestigious event where we expressed how grateful we are for the new system implemented into our house and how we can start to filter the “going green” theme throughout CHOC.

The first of its kind addition to a CHOC facility, a Solar System, which will be a huge benefit to not only the Northern Region home but also to the environment. The use of this Solar System will bring assurance that our families will have hot water and a warm house in winter, our phones will always be charged, and meals will never be delayed. These seem like small items but play a big role when we want to make their stay as comfortable as possible, providing a home away from home. Hedley Lewis has said that “the money which will be saved from this system will be utilised within the house, bringing down our monthly running costs.” In addition to this, the other benefits of these include being pollution-free and causes no greenhouse gases to be emitted after installation. Reduced dependence on foreign oil and fossil fuels. Renewable clean power that is available every day of the year, even cloudy days produce some power. Return on investment unlike paying for utility bills.

Over R2MILLION raised to change lives

CHOC Childhood Cancer Foundation SA Flip Flop Day 2022
Over R2MILLION raised to change lives!

Childhood cancer is a frightening reality that many families across South Africa have to deal with daily. South African families face the most challenging battle they will ever have to encounter – alongside the little warriors fighting on the Frontline. But luckily, these brave children and teenagers, along with their families, never have to stand alone.

Our 3rd Flip Flop Day, we were given an opportunity to show the children our passion & support by reminding them that they are never standing alone! CHOC’s annual event was celebrated on the 18th February 2022, and it was bigger, better and filled with more sole.  South Africans are certainly filled with wholesome souls when it comes to our children, showing that we can rally behind them, as CHOC SOLE-diers, and truly be a force to be reckoned with.

We are incredibly excited to announce that we have raised just over TWO MILLION RAND for Flip Flop Day 2022, an amount that seemed like a dream when we went into our third year.

This amount was announced along with our sponsor partners, The CoLab Network, Tekkie Town, PNA and Bongi Archi on Tuesday the 5th of April at our CHOC House in Saxonwold. It was an intimate occasion where we were able to look back at our success and determine how to move forward to change more lives, together!

Hedley Lewis, CEO of CHOC Childhood Cancer Foundation has said “Flip Flop Day has been an incredible campaign, a campaign that surpassed all our expectations. The expectations of how many stickers were sold, how many children and schools participated, how many board rooms simultaneously had jackets and flips flops. The how many’s just keep on going but most importantly the amount of awareness around the journey of patients who are undergoing cancer treatment. I would like to thank South Africa for embracing Flippie and myself for my maiden campaign.”

The money raised from Flip Flop Day 2022 will be going towards our CHOC Core Programmes. These programmes include our Emotional Support Programme, Awareness Programme as well as the patient facing support needs. This support includes emotional care, from diagnosis onwards and patient facing support ranging from accommodation, transport, CHOC Carebags, and basic nutritional support. Without our support, many children – particularly from low-income families living far from treatment centers – would not be able to access, or adhere to, the necessary but arduous treatment cycle, which can last over three years. Our money will also be used to advocate on behalf of those whose lives have been affected by childhood cancer through awareness campaigns and lobbying.

We incredibly grateful to every individual who stepped into a store or a CHOC office to purchase a sticker, to the thousands of students at schools who were involved, the Johannesburg Mini Council who became a voice for Flip Flop Day, the corporates who managed to get their entire teams involved and the members of the media who took this cause into their hearts and helped us spread the word to the general public, thank you for making this day possible!

Childhood Cancer in low and middle-income countries

Every year, according to the World Health Organization, an estimated 400 000 children and adolescents of 0-19 years old develop cancer. Leukaemias, brain cancers, lymphomas, and solid tumours, such as neuroblastoma and Wilms tumours are the most common childhood cancers. Cure rates in high-income countries (HICs) with 20% of the world’s children with cancer exceed 80%, while only 30% in low- and middle-income countries (LMICs) are cured.

 

The survival rate of childhood cancer in South Africa is around 55-60% and seems to be on the rise.

 

The economies of most LMICs are at an early stage of development; stages characterised by poverty, shortages of health-care workers, weak health systems, low education levels, poor access to modern technology, and a paucity of health care facilities. LMICs also have younger populations and therefore a larger proportion of children with cancer than HICs. Additionally, interventions such as public health campaigns which impact on early diagnosis and referral which translate into improved outcomes for adults may have limited impact on decreasing the incidence of paediatric malignancies are not related to modifiable risk factors. However, a few LMICs have seen declines in childhood mortality because of improvements in infectious diseases control. Consequently, noncommunicable disease such as childhood cancer are on the rise and it is likely that the Covid-19 pandemic will reverse gains made in some countries or further exacerbate progress due to resource constraints experienced from a health system – based, supply perspective.

 

While there is an overall need to strengthen systems to improve diagnostics and treatment for patients of all ages with cancer, dedicated centres for childhood cancer treatment require specialized diagnostic and therapeutic capabilities, and the ability to manage complications. Childhood cancer care should ideally be managed in a limited number of treatment centres in which multi-disciplinary resources and expertise are concentrated with good satellite centres who can deliver some treatment, thereby decreasing the burden on families, providing rapid management of complications, and decreasing abandonment of treatment. Intensive care units (ICUs) are imperative for the delivery of intensive chemotherapy, but centres lacking ICUs will also be able to cure a portion of children. Stable drug supplies are mandatory as drug shortages impact negatively on survival. Nutritional support is particularly important in LMICs where malnutrition at diagnosis or during treatment is prevalent with an adverse impact on outcome.

 

It is essential to have individuals trained in paediatric oncology i.e., paediatric oncologists, surgeons, pathologists, radiation oncologists, radiologists, pharmacists, nurses palliative care and allied care workers. Inpatient and outpatient beds preferably designated for paediatric oncology patients is essential. Infection control methods such as a hand hygiene programme, isolation capabilities, and a strong anti-microbial stewardship programme are desirable. Basic haematologic, biochemical, microbiologic, and pathologic laboratory services capable of timely turnaround is vital to the successful delivery of cancer care. Although advanced diagnostic modalities, such as flow cytometry and cytogenetics, are available in HICs, their absence does not preclude the establishment of a paediatric oncology centre.

 

Diagnostic imaging capabilities are necessary. Advanced modalities such as computerized tomography and magnetic resonance imaging are ideal, but basic modalities, such as plain radiographs and ultrasonography are sufficient to begin treating childhood cancer. Reliable supplies of chemotherapeutic agents and supportive care medications, such as antimicrobials, antiemetics, and analgesics, are crucial. According to the WHO only 29% of low-income countries report that cancer medicines are available to their populations compared to 96% of high-income countries. Blood product availability is vital as treatment protocols may cause bone marrow suppression, necessitating the timely and reliable delivery of safe blood products. However, this is not the case for all chemotherapies; treatment for several malignancies requires minimal transfusion support.

 

Abandonment of therapy is a significant cause of treatment failure in many LMICs. Financial support, provision of transport and accommodation decreases the risk of abandonment and must be considered an essential part of oncology care in LMICs. Many factors contribute to treatment abandonment, including a lack of financial resources, poor disease comprehension, cultural factors, belief in alternative medicines, fear of treatment toxicity, inadequate care on the part of health care workers, and decreased awareness. just as some level of basic supportive care capacity is necessary to treat children with cancer, basic educational and aid programs aimed at preventing abandonment are also imperative. Addressing the emotional, social, financial, and spiritual needs of children and families facilitates adherence to treatment, improves quality of life, and reduces the risk of abandonment.

Surgery is a vital component for diagnosis and treatment of many paediatric malignancies, e.g., Wilms tumour but many cancers are curable without surgical intervention. Similarly, radiation therapy is used for a variety of paediatric malignancies e.g., Hodgkin lymphoma, Wilms tumour, and sarcomas. However, in some cases, substituting additional chemotherapy or surgery can result in cure.

 

Different childhood cancers require different treatment intensities for maximum cure rates; for example, the chemotherapy for Wilms tumour is far less intense than for acute myeloid leukemia. Risk stratification systems is one of the major achievements in paediatric oncology where treatment intensity is matched to the disease and the disease risk, reducing both over- and under-treatment. It is imperative to avoid overtreatment in LMICs, as it contributes to an increase in treatment-related mortality. The balance point for each malignancy is essential to optimize therapy and curing the maximum number of children possible. The availability of supportive care is key to the balanced approach.

 

Collaboration with centres of excellence in HICs allows multi-disciplinary expertise with local knowledge and capabilities.

Collection of basic data on patient demographics, disease characteristics, and treatment outcomes, including cause of death, allows for evaluation of specific treatment protocols, and allows for modification of therapy. Many factors contribute to morbidity and mortality, e.g., treatment-related mortality, relapse, or treatment abandonment. Health care workers in many LMICs lack the time to collect, review, and analyse outcome information. In most settings, a resolute data manager with sufficient training, infrastructure, and support is needed to ensure accurate and timely data entry. Collection and analysis of data are neither academic research nor a luxury, but outcome monitoring is essential to improving the care and outcomes of children with cancer. Quality improvement efforts in LMICs make the difference between life and death.

 

Most LMICs lack policies to ensure good paediatric oncology care, and do not have a National Cancer Plan (NCP), a public health programme aimed at increasing the diagnosis, reducing the number of deaths and improving the quality of life of cancer patients, through the implementation of evidence-based strategies for the prevention, early detection, diagnosis, treatment, palliation, and research for innovative solutions and evaluation of outcomes. An NCP is to promote the implementation of cost-effective measures beneficial for the maximum number of persons in the population. NCPs promote the development of management guidelines, emphasise early with easy referral pathways, lowers the morbidity and mortality, and improves the quality of life of cancer patients, no matter where they are born.

 

Leaving no one behind includes government’s commitment to all children and their families including our most vulnerable children with non-communicable, long-term conditions.

 

Professor Gita Naidu Chair: South African Children’s Cancer Study Group

 

Sandhya Singh Director, Non-Communicable Diseases National Department of Health

 

Hedley Lewis Chief Executive Officer of CHOC Childhood Cancer Foundation South Africa

 

 

For Media Queries contact Hedley Lewis:  0829947655 – [email protected]

 

International Childhood Cancer Day (ICCD) – 15 February 2022

International Childhood Cancer Day (ICCD) | CHOC South Africa

The 15th of February marks International Childhood Cancer Day (ICCD) and is used to continue to create a greater awareness and education to empower all of us to recognise the early warning signs of childhood cancer, make informed choices about our children’s health and counter fears and misconceptions about childhood cancer.  Each year, a distinct group of childhood cancer stakeholders is highlighted: #throughourhands giving tribute to children and adolescents with cancer (2021), #throughyourhands with focus on healthcare teams and volunteers (2022) and #throughtheirhands paying tribute to the families and caregivers (2023).

 

The theme this year is #throughyourhands highlighting the incredible individuals whose hands care for children and teens with cancer or life-threatening blood disorders. Just as these children are entrusted in the hands of the multi-disciplinary teams, every child’s journey is also in our hands. It is our responsibility to know the early warnings signs for swift detection to be able to refer patients timeously to specialised treatment and care and in doing so decrease the mortality and morbidity of cancer in children.

 

Every year, according to the World Health Organization, an estimated 400 000 children and adolescents of 0-19 years old develop cancer. Leukaemias, brain cancers, Lymphomas, and solid tumours, such as Neuroblastoma and Wilms tumours are the most common childhood cancers. Cure rates in high-income countries (HICs) with 20% of the world’s children with cancer exceed 80%, while only 30% in low- and middle-income countries (LMICs) are cured. The survival rate of childhood cancer in South Africa is around 55-60% and seems to be on the rise.

 

Public health campaigns impact on early diagnosis and referral which translates into improved outcomes but may have limited impact on decreasing the incidence of paediatric malignancies are not related to modifiable risk factors. Dedicated centres for childhood cancer treatment requires specialised diagnostic and therapeutic capabilities, and the ability to manage complications. Childhood cancer care should ideally be managed in a limited number of treatment centres in which resources and expertise are concentrated with good satellite centres who can deliver some treatment, thereby decreasing the burden on families, providing rapid management of complications, and decreasing abandonment of treatment.

 

It is essential to have individuals trained in paediatric oncology i.e., paediatric oncologists, surgeons, pathologists, radiation oncologists, radiologists, pharmacists, nurses, and allied care workers. Different childhood cancers require different treatment intensities for maximum cure rates; for example, the chemotherapy for Wilms tumour is far less intense than for acute Myeloid Leukaemia. Collaboration with centres of excellence in HICs allows multi-disciplinary expertise with local knowledge and capabilities.

 

Every child, teenager and parent who starts their childhood cancer journey, have hope that their child will survive and live a long, happy, healthy, and fulfilled life. As a global childhood cancer community, we believe that increased awareness and accurate information and knowledge can empower all of us to recognize the early warning signs of childhood cancer, make informed choices about our children’s health and counter fears and misconceptions about childhood cancer.   During the prevention, care, and management; as well as the rehabilitation and integration of survivors, there are many role-players that contribute to the success thereof. Parents and families have hope when they trust their children and teenagers #throughyourhands and on ICCD 2022 we salute the healthcare workers, allied workers and NGOs who impact on the lives of children and teens with cancer.  They are the voices of the families and give hope to the children, teens and their families to complete the cancer treatment. Together, and #throughyourhands we can reach the WHO Global Childhood Cancer Initiative (GICC) of 60% survival rate by 2030 and in doing reduce the suffering of the children.

 

Covid-19 has had a substantial impact on both those that treat and those who are treated. Leaving no one behind includes government’s commitment to all children and their families including our most vulnerable children with non-communicable, long-term conditions. Let us amplify the visibility of childhood cancer at all levels and reach the breadth of stakeholders with the power to effect life-saving change.

 

Together, we can sustain and reinforce healthcare professionals in the fulfilment of their all-important role and make a positive difference for children and teenagers with cancer worldwide.

 

If you are concerned your child may have cancer, please refer your child or teenager here: https://choc.org.za/choc-patient-referral-pathways/

 

 

Professor Gita Naidu Chair: South African Children’s Cancer Study Group

 

Sandhya Singh Director, Non-Communicable Diseases National Department of Health

 

Hedley Lewis Chief Executive Officer of CHOC Childhood Cancer Foundation South Africa

 

 

For Media Queries contact Hedley Lewis:  0829947655 – [email protected]