Department and stakeholders call for support for children with cancer

Pretoria: The Department of Health, working together with the South African Association of Paediatric Haematology and Oncology (SAAPHO), National Cancer Registry (NCR) and CHOC Childhood Cancer Foundation South Africa, urges members of the public to show support for children living with cancer and also survivors.

The country joins the global community during the month of September to raise awareness about the impact of childhood cancers including leukaemia, brain cancers and lymphomas in families and communities, and also to acknowledge the critical role played by health professionals to support children with cancer, and their families.

Cancer is one of the leading causes of death among children and adolescents worldwide. It is estimated that 400 000 new childhood cancer cases are diagnosed each year, with around 1000 of these occurring in South Africa, as reported by the World Health Organization (WHO), with leukaemia being most common cancer diagnosed in children in South Africa according to the National Cancer Registry.  It is essential to come together in solidarity with those affected and work towards better outcomes for children with cancer.

Gold September is an internationally recognised month dedicated to raising awareness about childhood cancer. The iconic gold ribbon symbolises the incredible strength, courage, and resilience of children and teenagers impacted by this disease. The primary objective of Gold September, as well as ongoing efforts, is to increase public awareness, provide research support, and advocate for improved treatment and care for children and teenagers battling cancer.

It is essential to unite to amplify early detection, treatment, and support for affected families in alignment with the World Health Organization’s Global Initiative for Childhood Cancer (GICC). The GICC aims to elevate the global overall survival rate to 60% by 2030 and to ensure that children and adolescents can lead a life free from pain and suffering, even in the face of such a challenging illness.

Children and teenagers with cancer and their families are confronted with a myriad of obstacles that extend far beyond the complexities of treatment. Economic hardships, lack of community support, and sometimes the distances away from hospitals exacerbate these challenges. The emotional, physical, social, and educational burdens imposed by the disease make the treatment journey incredibly daunting. We as a nation must address the all-encompassing needs of these patients and their families to offer comprehensive support.

One of the significant challenges facing the medical community and those who support their heroic efforts to treat patients is the delayed presentation of children at primary health care centres and Paediatric Oncology Units in tertiary hospitals across the country. To improve early diagnosis, we urge all South Africans to recognise that “Children do get cancer.” It is essential to be aware of the Siluan Early Warning Signs of Childhood Cancer and to act promptly if any of these signs are apparent in a child you know. Additionally, we encourage everyone to support families throughout their journey instead of allowing them to feel isolated.

The Department of Health extends appreciation to the dedicated members of the medical community, as well as to the outstanding efforts of civil society, non-governmental organisations, and the compassionate South African public. Their tireless collaboration is instrumental in providing patients with the best care and support.

The National Cancer Registry is committed to provide as accurate and up-to-date statistics on childhood cancers to help guide decision makers and policies to make meaningful impact for children and families affected by childhood cancers.

According to Mr Hedley Lewis, the CEO of CHOC, a non-profit organisation caring for children and teenagers diagnosed with cancer or life-threatening blood disorders, says that their organisation continues to advocate for sustained efforts within the childhood cancer community to collectively foster hope by raising awareness about the early warning signs of the disease.

“Additionally, it is important to empower the public with information to promptly report any instances where they suspect a patient may be exhibiting symptoms indicative of childhood cancer”, he said.

Meanwhile, Prof Gita Naidu, the Chair of SAAPHO and Head of Paediatric Oncology at Chris Hani Baragwanath Academic Hospital, urges the society to continue with their unwavering support for the children and families afflicted by cancer. “Families are torn apart by the diagnosis of a child with cancer; siblings experience untold anguish; families are thrown into the depths of financial hardships with many unexpected out-of-pocket expenses; and families may experience a breakdown in relationships”, she said.

For more information and media enquiries, please contact:

Mr Foster Mohale
Health Departmental Spokesperson
0724323792
[email protected]

Mr Hedley Lewis
Childhood Cancer Foundation South Africa
082 944 7655
[email protected]

Tech Meets Care:

CHOC and Core Unite to Launch iSchoolAfrica iPad Learning Programme in Four Gauteng Hospital Schools

The Impact of the Programme: Xichavo Mhangani’s Story

Gauteng, South Africa, 3 September 2024 – CHOC Childhood Cancer Foundation SA (CHOC) and Core Group, the leading distributor of Apple, DJI and Nintendo in South Africa and Sub-Saharan Africa, have partnered to introduce the iSchoolAfrica iPad Learning Programme to four hospital schools in Gauteng, including the Chris Hani Baragwanath Hospital School situated inside the Chris Hani Baragwanath Academic Hospital.

This initiative supports paediatric oncology patients by ensuring their education continues despite the challenges posed by cancer treatment and prolonged hospital stays.

The programme brings iPads loaded with engaging content directly to children and teenagers undergoing cancer treatment. The goals include reducing anxiety, minimising learning loss, and assisting with various therapies. Comprehensive training is provided to hospital schoolteachers and CHOC volunteers to integrate the technology effectively into the children’s and teenagers’ routines and educational plans.

Core has contributed iPads equipped with built-in accessibility features and a wide selection of age-appropriate curriculum and entertainment apps. “We are thrilled to partner with CHOC to support the needs and rights of young learners,” said Dian De La Port, CEO of Core.

The Impact of the Programme: Xichavo Mhangani’s Story

Xichavo Mhangani, shared his journey with osteosarcoma, a type of bone cancer. Despite the challenges of his diagnosis and treatment, Xichavo has shown remarkable resilience. He balances his responsibilities as the head of a child-headed household, caring for his younger siblings, while pursuing his academic goals.

During his treatment, Xichavo found solace and support at the CHOC house in Diepkloof. The staff and other children became like a family to him, helping him come to terms with his diagnosis.

Xichavo’s story highlights the potential impact of the iSchoolAfrica iPad Learning Programme. Despite the toll of his treatments, Xichavo is working hard to excel in his studies and dreams of becoming a chartered accountant. Access to the iSchoolAfrica programme could have provided him with additional educational support, potentially improving his academic performance during this challenging time.

“Gold September is an internationally recognised month dedicated to raising awareness about childhood cancer. The iconic gold ribbon symbolises the incredible strength, courage, and resilience of children and teenagers impacted by this disease. It is essential to unite to amplify early detection, treatment, and support for affected families in alignment with the World Health Organization’s Global Initiative for Childhood Cancer (GICC). The GICC aims to elevate the global overall survival rate to 60% by 2030 and to ensure that children and adolescents can lead a life free from pain and suffering, even in the face of such a challenging illness,” said Prof. Gita Naidu, Head of Paediatric Oncology at Chris Hani Baragwanath Academic Hospital.

This partnership embodies a shared commitment to improving the quality of life and educational opportunities for children battling cancer.

“For CHOC, this collaboration and initiative is a dream come true. It is exciting to be able to have the launch of this programme during September, which is known internationally as Childhood Cancer Awareness Month. This September, we stand together to raise awareness about the challenges faced by children and teenagers with cancer, survivors and their families. Our voices are stronger when unite, and together we can make a difference,” said Hedley Lewis, CEO at CHOC.

For more information about the iSchoolAfrica iPad Learning Programme, please contact:

Dian De La Port – CEO of Core Computer Business – [email protected], Hedley Lewis – CEO of CHOC – [email protected] or Michelle Lissoos – Director of iSchoolAfrica – [email protected].

PLATINUM LIFE’S ROLE AS A FOUNDATIONAL DONOR FOR CHOC

Platinum Life, as a foundational donor, has played a critical role in supporting the lives of children and teenagers throughout their challenging journeys being diagnosed with cancer or life-threatening blood disorders. Their contributions to CHOC Childhood Cancer Foundation South Africa have made a significant impact, reaching thousands of patients and families.

A Message from CHOC’s CEO

“This year as CHOC turns 45, we would like to, on behalf of the patients and their families, extend our heartfelt gratitude to every client of Platinum Life who contributes to CHOC through this remarkable partnership,” said Hedley Lewis, CEO of CHOC. “Your generosity makes a profound difference in the lives of those facing these immense challenges.”

CHOC’S SUPPORT PROGRAMMES

Our comprehensive support programmes, including psychological counselling, home-away-from-home accommodation facilities, nutritional support, and transportation assistance, have provided essential aid to those in need. Through their contributions, they have enabled CHOC to continue offering our comprehensive Support Programmes which encompass a range of essential services to our beneficiaries.

Psychosocial and Emotional Support

We understand that the emotional impact of cancer is immense. Our social workers walk alongside families from diagnosis through treatment, and even during the difficult moments of bereavement. We provide emotional support, ensuring that families feel heard and understood.

Practical Support

Our practical support extends beyond medical care. When a child is newly diagnosed, our social workers ensure they receive a Carebag filled with practical items. We also provide transportation assistance, ensuring regular treatment visits, whilst accommodation in our 13 facilities across the country offers a home-away-from-home for families during treatment.

Financial Bereavement Support

Families who have lost a child receive financial assistance during their grieving process. We recognize the immense challenges they face and aim to alleviate some of the burdens.

Post-Treatment Support

Survivors and their families cope with long-term effects after treatment. Our team assists with reintegration into society, helping them navigate life beyond cancer.

Advocacy and Awareness

CHOC advocates for childhood cancer causes both nationally and internationally. Our SILUAN Early Warning Signs awareness programme aims to increase early detection and diagnoses, ultimately improving survival rates. As an organisation, we strive to influence decision-makers to ensure comprehensive and adequate care for all children and teens with cancer or life-threatening blood disorders. Together, we can make a difference in the lives of those affected by these challenging conditions.

PLATINUM LIFE’S SUPPORT FOR CHOC

Platinum Life supports CHOC by donating a percentage of each premium collected on their cancer policies to the organisation monthly. One of the beneficiaries is Xichavo Mhanganiand this is his story:

XICHAVO MHANGANI’S STORY

My name is Xichavo Mhangani. I am a 19-year-old grade twelve student, as well as the head of a child-headed household. My mother passed away in 2018, when I was sixteen years old. A huge responsibility fell on my shoulders, I needed to take care of my two younger siblings, my nine-year-old brother and my twelve-year-old sister.

Diagnosis

In 2020 I went to Chris Hani Baragwanath Hospital’s hematology department to find out why I was not feeling well. After numerous tests and biopsies, the results showed that I have Osteosarcoma, also known as bone cancer. The day I was diagnosed I cried, but there was no one to comfort me. The diagnosis came as a shock to me. I felt so scared and totally alone. My uncle who lives in Venda wanted to take my two siblings to go live with my granny, but I refused because I want them to be with me—they are all I have. I believe myself to be an independent older brother, who can take care of them.

During my first year of treatment, when I was at my sickest, my sister took care of me and for that I want to thank her and tell her that I really love her. My school was wonderful and supportive and understood that I could not attend for the first six months of my treatment. I am now in Grade 12. Even though the treatments take a toll on me, I need to stay at home for at least a week after each treatment, I’m trying my best and I am working really hard to get distinctions in my subjects, to be able to study further.

Finding a Home at CHOC

When I started my treatment, I was told that I could stay in the CHOC house in Diepkloof. I was hesitant because it was extremely difficult to leave my brother and sister in the care of my neighbors but due to financial constraints I had no other choice. It was the best decision I ever made. Slowly but surely, I started to come to terms with my cancer diagnosis. The other children in the house became like a family to me. I could relate to them because they were going through the same journey as I was. The CHOC staff, especially Zotha, the house supervisor, and the social workers took me under their wing and took care of me, supporting me and looking after me as if I were their own child, and for that I want to thank them.

Future Aspirations

I am eternally grateful to CHOC’s social worker Lawrence, who ensured that I have all I need regarding transport money, food parcels for my siblings, emotional support when I needed it, and even a gift or two for special days. He walks an extra mile for me. I also want to thank all the doctors and nursing staff that are taking such good care of me. When I came to CHOC, I could not believe what a wonderful place it is. I want to say thank you to all CHOC’s donors. It is because of them that CHOC is able to help so many children and families. My siblings and I are an example of this. My dream is to become a chartered accountant, to be able to provide for my siblings to the best of my ability. I want my sister and little brother to be successful in life.

I’m grateful to everyone who is making this difficult journey so much easier. With the excellent care and support of the whole CHOC team, I feel so much better and I have hopes and a dream for a bright future.

Solar Rays of Hope: National Lotteries Commission South Africa lights up the CHOC Childhood Cancer Foundation SA’s Home.

We are proud to announce a significant stride in our mission to make a difference: CHOC Childhood Cancer Foundation SA continues to embark on our renewable energy project for all our accommodation facilities. With unwavering dedication, we’re reducing our carbon footprint and illuminating the path toward a greener future.

A Home Away from Home

Situated close to specialised Paediatric Oncology Units, our accommodation facilities serve as a comforting refuge for children and teenagers undergoing treatment for childhood cancer or life-threatening blood disorders. These houses are more than just buildings; they are a home-away-from-home  to our families. Here, families find solace, support, and access to critical healthcare services that might otherwise be out of reach due to geographical or financial constraints.

Healing in a Therapeutic Environment

Within these walls, hope thrives. The therapeutic environment of CHOC houses fosters resilience and positivity during the challenging cancer journey. Patients and their parents or caregivers maintain a hopeful outlook, bolstered by the knowledge that they are not alone. Nutritious meals sustain them, and transportation to and from hospitals ensures access to vital treatments.  Lynette Muthuray “The installation of the solar systems at both CHOC Houses has made a tremendous difference in the day-to-day operations at the CHOC Houses.  Families who use medication that needs to be refrigerated are relieved as the electrical appliances remain on. The House staff does not need to charge lights but instead they can focus on the well – being of the families. Overall, it assists with the smooth running of the CHOC Houses”.

Solar Rays of Change

Thanks to the remarkable funding from the National Lotteries Commission (NLC) our Plumstead and Sybrand Park CHOC Houses have received solar valued at R446,000. This funding is more than just an investment in infrastructure; it’s an investment in hope, health, and well-being. Furthermore, it enables us to effectively deliver on our programs maintaining hygiene, safety, and nutritional care, reducing fears and anxieties experienced by beneficiaries during load-shedding.

Hedley Lewis, CHOC CEO expressed how grateful we are for the funds received and how we can start to filter the “going green” theme throughout CHOC. Hedley Lewis says “The money which will be saved from this system will be utilised within the house, bringing down our monthly running costs.” 

Together, We Shine Brighter

As we celebrate this milestone, we extend our heartfelt gratitude to National Lotteries Commission South Africa. Your commitment to our cause fuels our determination to create a brighter, healthier future for every child battling cancer.

Join us on this solar journey. Together, we can light up lives, one sunbeam at a time.

SILUAN’S Early Warning Signs of Childhood Cancer

Cancer is a term that encompasses over 100 different diseases characterised by the uncontrolled growth of abnormal cells. This can occur in various organs and tissues, including but not limited to the lungs, colon, breast, skin, bones, and nerves.

Detecting cancer early significantly improves survival rates. More than 50% of people diagnosed with cancer live for over 5 years, and some types of cancer have survival rates as high as 90%. Early diagnosis is crucial because early-stage cancer is more responsive to treatment and less likely to be fatal.

Siluan’s Early Warning Signs of Childhood Cancer

At CHOC Childhood Cancer Foundation South Africa, we emphasise the importance of recognising the early warning signs of childhood cancer. We use Siluan’s Early Warning Signs to raise awareness and promote early diagnosis:

  • S – Seek medical help early for ongoing symptoms
  • I – White spot in the eye, new squint, sudden blindness or bulging eyeball.
  • L – Lump on the stomach, pelvis, head, arms, legs, testicle, or glands
  • U – Unexplained fever present for over two weeks, weight loss, fatigue, pale appearance, easy bruising, and bleeding
  • A – Aching bones, joints, back, and easy fractures
  • N – Neurological signs, a change in walk, balance or speech, regression, continuous headaches with/without vomiting, and an enlarged head
Recognising Cancer-Related Symptoms

It’s essential to be vigilant for signs and symptoms that could indicate childhood cancer. These may include:

  • Aching bones, joints, back, and easy fractures
  • Unexplained lumps, bumps, or swelling.
  • Significant weight loss
  • Extreme tiredness
  • Persistent headaches
  • Prolonged fever
  • Eye abnormalities such as a white spot, new squint, sudden blindness, or a bulging eyeball
  • Changes in walking, balance, speech, or an enlarging head

While these symptoms can be subtle or easily attributed to other causes, it’s important to consult a doctor if they persist or worsen.

Taking Action

At CHOC, we advocate the importance of early cancer detection. If you notice any of these symptoms in a child or teen, seek professional medical help promptly. Early detection of cancer saves lives in both children and teens.

Learn More

To learn more about Siluan’s Early Warning Signs of Childhood Cancer and how CHOC supports children and teens with cancer and life-threatening blood disorders, click here. If you suspect a child may be showing symptoms of childhood cancer, refer them to our patient referral pathways at CHOC Patient Referral Pathways. For immediate assistance, contact the CHOC helpline at 0800 333 555.

Remember, early detection can make a significant difference in the outcome of childhood cancer. Together, we can raise awareness and save lives.

International Childhood Cancer Awareness Day

JOINT MEDIA STATEMENT

To: Editors & Health Journalists
Issued by: National Department of Health
Date: Thursday, 15 February 2024

International Childhood Cancer Awareness Day – 15 February

Pretoria: The National Department of Health (NDoH) urges health care workers and communities to be aware of the SILUAN warning signs for childhood cancer. This will allow for early detection and effective management of childhood cancers which will result in better outcomes.

Approximately 400 000 children and adolescents are diagnosed with cancer annually. The South African children’s Tumour Registry reports 1000 new children and adolescents with cancer annually,  but many are missed and do not receive treatment.

Parents, educators, general practitioners and paediatricians play a crucial role in early detection of childhood cancers. It is important to know the early signs of childhood cancers which include a white spot in the eye or sudden blindness; lump on any place on the body mostly in the abdomen, neck and limbs; unexplained fever or weight loss; aching bones and easy fractures; and a change in behaviour, gait, headaches and regression in milestones.

The country joins the global community to commemorate International Childhood Cancer Day to raise awareness about childhood cancers and to express support for children and adolescents living with cancer, the survivors, and their families. The common childhood cancers in South Africa are leukaemia, lymphoma, brain tumours, eye and kidney tumours.

The International Childhood Cancer Day is observed on the 15th of February annually to highlight the vital role of community engagement and support in addressing the complexities associated with childhood and adolescent cancer.

The NDoH in collaboration with the South African Association of Paediatric Haematology of Oncology (SAAPHO), WHO and CHOC Childhood Cancer Foundation SA acknowledge and commend the significant contributions made towards the care of children and adolescents with cancer by various stakeholders, including the medical community, civil society, parent groups, non-governmental organisations and individual members of our society.

Hedley Lewis, CHOC CEO has said, “these contributions provide crucial support to children and adolescents with cancer, survivors, and their families. Cancer impacts negatively on siblings and other family members. The challenges faced by these families extend beyond medical treatment, encompassing emotional, physical and social, financial, educational, and long-term health effects”.

According to Professor Gita Naidu, chair of South African Association of Paediatric Haematology Oncology, there is a need to raise primary health care and community

awareness of the SILUAN Early Warning Signs of childhood cancers especially amongst parents, caregivers and educators.

Early diagnosis and swift referral to treating centres is imperative to improve the outcomes of this dreaded disease. Childhood cancer is curable, but only if diagnosed and treated timeously”. Cancer care includes early diagnosis, the availability of diagnostics and therapeutics, supportive, long-term follow-up, quality of life and palliative care.

The WHO Global Initiative for Childhood Cancer (GICC) was launched in September 2018 with the aim of improving the global overall survival to 60% by 2030 and to allow these children and adolescents to live and die without pain and suffering. South Africa remains committed to focusing on childhood cancer and is aligned with the WHO-GICC goals.

SAAPHO and CHOC are hosting SIOP Africa in Johannesburg from 4-8 June 2024, and this will create an opportunity to share knowledge, foster collaborate, engage with stakeholders nationally, on the continent and globally with the aim of improving the lives of children and adolescents with cancer.

Flip Flop Day – Friday, 23 February 2024

The inconceivable diagnosis of childhood cancer should not be a challenge that any parent should ever have to face. But unfortunately, it is a reality that many families across South Africa have had to come to terms with on a daily basis. These families are facing a reality like no other, one that no one should have to face however, these brave children and teenagers, along with their families never have to stand alone.

Owami, a brave 6-year-old boy was diagnosed with leukaemia last year. His parents were devastated when they heard the news but found solace in the fact that they weren’t alone. CHOC Childhood Cancer Foundation South Africa provided them with the emotional and practical support they needed to get through this difficult time. From the moment they received the diagnosis, CHOC was there to offer a helping hand, providing them with essential CHOC Carebags, nutritional food support, transport assistance, psychosocial support and even accommodation when they needed it most.

Owami’s parents were amazed by the level of care and support they received from CHOC. They felt like they were part of a family, and that made all the difference. Owami is still going through the childhood cancer journey, but he’s not alone. CHOC is there every step of the way, providing him with the support he needs to keep going.

Annually Flippie arrives in February, and we need to encourage South Africans to wear their flip flops, make a donation by purchasing a Flip Flop Day sticker for R10 and wear your sticker on Flip Flop Day which is Friday, 23rd February 2024. This will help support children like Owami and their families. So, let’s show our support for these brave children and teenagers and wear our soles with pride!

Flippie, South Africa’s favourite and most well-loved CHOC SOLE-dier has a serious passion for compassion and has stepped up to lead the movement to get everyone from the seaside to the city – to show their support for these fearless children and teenagers.

CHOC Childhood Cancer Foundation South Africa is a registered and internationally recognised Non-Profit Organisation (NPO) whose aim is to provide life-changing and all-embracing support programmes to both the child or teenager and their families once a diagnosis has been given. Our services provide emotional support through the cancer journey, as well as palliative, end-of-life care and bereavement support. We also offer practical support for patients and families, including essential CHOC Carebags, nutritional food support, bereavement support, accommodation, transport to and from treatments, and our Educational and Awareness Programme on the Siluan Early Warning Signs of Childhood Cancer.

Hedley Lewis, CHOC CEO, emphasises the impact of just one sticker, stating, “Your donation will make a significant difference in the lives of these young ones and their families. By contributing just R10, you assist CHOC in funding their Core Programmes and extend hope, solidarity, and support to those diagnosed with childhood cancer”. Hedley further highlights, “At any one time, CHOC can have around 1500 children and teenagers in our care. Show your heart by wearing your soles! From classrooms to boardrooms, support us to support them for only R10.”

Flip Flop Day is now in its 5th year! Join us on Friday, 23rd February for Flip Flop Day 2024. Partnered for greatness, you can get your sticker for only R10 at your nearest PNA, Tekkie Town, or by visiting www.choc.org.za alternatively popping into your nearest CHOC Regional Office.

Are you ready to join in? Let’s flip for CHOC!
#FlipFlopDay
#FlipFlopDay2024

Childhood Cancer Awareness Month: 01- 31 September

JOINT MEDIA STATEMENT

To:                  Editors & Health Journalists
Issued by:      National Department of Health
Date:              Wednesday, 06 September 2023

Pretoria: The Department of Health in collaboration with various local and international stakeholders including CHOC Childhood Cancer Foundation South Africa and the World Health Organization (WHO) will spend the month of September creating awareness of the impact of cancer in many children and their families around the country to ensure children with childhood cancer in South Africa are diagnosed early for successful treatment.

Childhood cancer is one of the leading causes of disease-related death past infancy in children and adolescents. Several barriers impede the early diagnosis and referral of the child with cancer to treatment centres. Myths and stigmas surrounding the cause of childhood cancer is a major barrier to families seeking medical care timeously.

Lack of knowledge and fear of the unknown drives the myths, fallacies and stigmas surrounding childhood cancer resulting in missed diagnoses or presentation with advanced disease which negatively impacts outcome. We must educate our communities and primary health care workers that children do get cancer, can be treated, and cured.

In high -income countries with 20% of the world’s children with cancer, survival rates are more than 80% while the situation is different in low- and middle-income countries where survival is as low as 20-30%. Fortunately, children with cancer in South Africa have much better outcomes of between 55-60%.

According to Professor Gita Naidu, chair of South African Association of Paediatric Haematology Oncology, South Africa aligns with the WHO Global Initiative for Childhood Cancer (WHO-GICC), which aims to increase the survival of children and adolescents with cancer globally. We need to focus on early diagnosis, referral to specialised treatment centres, ensure access to diagnostics and therapeutics, and emphasise quality of life, supportive, long-term follow-up, and palliative care.

The WHO-GICC established in 2018, brings together stakeholders from around the world and across sectors with the joint goal of increasing the survival rate of children with cancer globally to at least 60% by 2030.

The initiative is guided by CureAll, a strategic and practical approach that involves Centers of excellence and care with a sufficient and competent workforce to increase capacity to deliver services; Universal health coverage that ensures access to essential medicines, diagnostics, and technologies; Research and innovation that generate evidence-based solutions for local contexts; and lastly Empowerment of patients, families, and communities through education, awareness, and advocacy.

Hedley Lewis, CHOC CEO calls on South Africans to unite and #GiveSomeHope as we work together to achieve the WHOs target to ensure at least 60% survival in low- and middle-income countries and to reduce suffering of all children with cancer by 2030 worldwide.

Dr Kibachio Joseph Mwangi, the Medical Officer responsible for Non-Communicable Diseases at the WHO, South Africa notes that the poor outcome of childhood cancer management in low- and middle-income countries is primarily driven by delays in diagnosis, inaccurate diagnosis, inaccessible therapy, abandonment of treatment, death from toxicity (side effects), and relapse. Dr Mwangi reckons that the current partnership with the WHO-GICC can lead to improved outcomes for children with cancer by focusing on a prompt, correct diagnosis followed by evidence-based therapy.

The department stresses the importance the St Siluan warning signs of childhood cancer which can be accessed at https://choc.org.za/childhood-cancer-early-warning-signs/.

 For more information and media enquiries, please contact:

 Mr Foster Mohale

Health Departmental Spokesperson

0724323792/ [email protected]

 

Mr Doctor Tshwale

Spokesperson for Health Minister

063 657 8487/ [email protected]

 

Mr Hedley Lewis

CEO CHOC

0829947655 / [email protected]

Musa Motha joins CHOC

Musa Motha joins CHOC Childhood Cancer Foundation SA at Chris Hani Baragwanath Academic Hospital in Commemorating Nelson Mandela Day. 

CHOC Childhood Cancer Foundation SA, a non-profit organisation dedicated to supporting children and teenagers with cancer or a life-threatening blood disorder and their families, is proud to have joined talented performer Musa Motha to mark Nelson Mandela Day with a special and heartwarming event.

Born and raised in Johannesburg, Musa’s life took an unexpected turn when he was diagnosed with bone cancer at the tender age of 11. Despite facing a challenging journey that led to the amputation of his left leg, Musa’s passion for soccer and an unyielding spirit guided him towards an even more profound discovery – the art of dance. In 2023, Musa achieved a historic moment on Britain’s Got Talent by receiving the first-ever group Golden Buzzer. Unanimously impressed, all the judges pressed the buzzer, propelling him straight through to the live shows.

With unwavering determination, Musa pursued his newfound passion, and today, he stands as an internationally acclaimed and award-winning performer, an inspiration to countless individuals who have been touched by his story.

Musa, the extraordinary 28-year-old amputee dancer, whose indomitable spirit and talent have captivated audiences worldwide, visited Chris Hani Baragwanath Academic Hospital on Mandela Day, July 18th, to commemorate the legacy of Nelson Mandela and spread a message of hope and resilience.

Mandela Day, a day of global significance, honours the late Nelson Mandela’s values and commitment to making the world a better place. It encourages people from all walks of life to engage in acts of kindness, compassion, and service to others. Musa’s visit to Chris Hani Baragwanath Academic Hospital on this special day serves as a touching tribute to Mandela’s enduring legacy and a symbol of resilience and perseverance in the face of adversity. During Musa’s visit, we had the honour of being accompanied by Professor Gita Naidu, who was part of the team that treated him. She shared her thoughts and insights on the occasion. She said Musa is an inspiration to our young children and teenagers, from the most underprivileged sectors of our society. “Children and teenagers can be cured of cancer and can go on to achieve their dreams.”

Musa met with young patients, many of whom are facing their own battles with illness and challenges. Through his presence and inspirational story, Musa brought smiles to their faces, instilling a sense of hope and motivation in their hearts. “We are thrilled to have Musa join us at Chris Hani Baragwanath Academic Hospital for Mandela Day,” said Hedley Lewis, CHOC CEO. “His story is a powerful testament to the strength of the human spirit. We hope that his visit will serve as an inspiration to the patients, reminding them that they are not alone in their journey.”

Together, let us remember the words of Madiba: “It is in your hands to create a better world for all who live in it.”

For more information about how to support CHOC’s mission, please visit www.choc.org.za.

Get involved this Mandela Day

Get involved this Mandela Day

Give what you can

“There can be no greater gift than that of giving one’s time and energy to helping others without expecting anything in return.” – Nelson Mandela

Mandela Day, celebrated annually on July 18th, is not just an ordinary commemoration of the life and legacy of Nelson Mandela, the iconic South African leader. It goes far beyond that, acting as a call to action, a reminder of our collective responsibility to strive for a more equitable, inclusive, and compassionate world.

By participating in Mandela Day, you become part of a transformative movement that empowers individuals to effect change in their communities and beyond. It provides an opportunity to engage in acts of kindness, volunteerism, and social activism, amplifying the values Mandela cherished—freedom, equality, and solidarity.

Mandela Day encourages you to explore your passions, lend your skills, and ignite your potential to shape a better future for all.

Please see our wishlist below:

  • Tablets or android phones for CHOC Houses for team to download Feed the Monster and other age-related apps to support learning and development.
  • Install a cognitive wall to assist with learning and healing through play.
  • Provide perishable and non-perishable food items for meals at the CHOC Houses.
  • Provide food hampers to address malnutrition in the community home.
  • Provide toiletries, colouring books, and crayons to include in CHOC Carebags for newly diagnosed beneficiaries.
  • Detergent, cleaning, and gardening equipment.
  • Laptops for staff.                                                                 
  • Scrubs for staff (Psychosocial Staff and House Staff).

For other items please don’t hesitate to contact our regions across South Africa.

The power to create meaningful change lies within each of us. Mandela Day provides a unique platform to channel that power and collectively work towards a world that upholds the values of compassion, equality, and justice. By embracing the spirit of Mandela and dedicating just a fraction of our time to acts of service, we can sow seeds of transformation, making a lasting impact on individuals, communities, and societies. So, join the Mandela Day movement today, and let us together forge a brighter future for all of humanity.

Find the region closest to you here

Meet Ma Rose, House Assistant – CHOC House Centurion 

A story of Hope

Rose Mandlazi’s journey started with CHOC Northern Region in 2007 when she joined as a part-time house assistant at the CHOC House. She vividly remembers entering the CHOC House for the first time, realising that it is a place where children are diagnosed with cancer or life-threatening blood disorders, diseases she didn’t even know existed. Initially, this realisation made her emotional, but something kept “pushing her” to keep returning to the CHOC House. She had a strong feeling that she belonged with CHOC.

Cooking with Auntie Minnie, the house mother, at the CHOC House, which was located on Trouw Street at that time, made her feel energised. “It’s something I enjoy. In the kitchen, my heart warms up because I know I can do something that the children will eat and enjoy.” Walking the journey with the children and having the power to cook a meal that they would try to eat after receiving chemotherapy, even though it was difficult for them to enjoy a meal, Rose ensured that her meals were prepared with so much love that it made a difference. She observed how her cooking made the “mommy’s journey easier and took away a bit of their stress” while they stayed at the CHOC house.

The kitchen is the place where friendships are formed, and she recalls an 11-year-old boy who was part of the CHOC House family for almost two years. When the boy was admitted to the hospital, Rose received a phone call from him asking for his favourite “CHOC House noodles.” Since the boy didn’t want to eat in the ward, the nursing staff were happy to see Rose arrive with a special meal for “her child.”

Having been a part of CHOC for 16 years, Rose said, “CHOC is my calling and not just a payslip at the end of each month.”

Thank you, Rose, for going the extra mile and for keeping more than hope alive for these brave young ones.


CHOC’s Nutritional Support Programme

Why is nutrition so important?

Diet and nutrition are very important in childhood because children are growing and developing. Good nutrition is particularly important when a child has cancer because the child’s growing body also has to cope with the various treatments and their side effects. The focus should be on preventing or treating cancer-related malnutrition, as prevention is always better than cure.

Not all children react to cancer treatment in the same way. Many children have no problem with nutrition – they are able to eat enough and have the strength and energy to maintain their normal levels of activity. However, some children lose weight, grow more slowly, frequently feel tired or irritable and get infections more easily.

Food parcels form part of CHOC’s practical support programme. It is a temporary provision of assistance for families in a desperate situation who cannot provide for their family’s basic needs.  A CHOC recommended food parcel makes provision for weekly / monthly meals for a family as a form of “social relief of distress”. It is recommended by and based on the psychosocial assessment of a social worker / counsellor / social auxiliary worker.  In some cases, food vouchers are distributed instead of food parcels. We handed out 868 food parcels and 155 food vouchers. The value of the food vouchers were R92,000 and 5104 people benefitted from this nutritional support. 

Thank you to FNB Structured Finance Solutions

On behalf of our children and parent beneficiaries, board, management and staff I thank the FNB Structured Financial Solutions unit for your overwhelming support towards CHOC and its beneficiaries.

The funding was utilised towards:

  1. The installation of a outdoor stair lift at CHOC Port Elizabeth house: This has been successfully installed and will accommodate our outpatient beneficiaries with disabilities. The five-bedroom house serves 13 beneficiaries per night attending treatment at Port Elizabeth Provincial Hospital. 
  2. Provision of 10 food parcels for beneficiaries attending treatment at Frere hospital addressing malnutrition within the childhood cancer household. The food parcels were delivered on 5 June 2023 and in the process of distribution.

Thank you Lancet Laboratories

Thank you so much for your generous sponsorship and for being involved in our annual CHOC Golf Day in East London. Your generosity and support are really appreciated and ensures that we are able to raise funds to continue supporting children and teens with cancer and their families and to keep more than hope alive.

Thank you Gerber Goldschmidt Group

We thank the selfless team of Gerber Goldschmidt Group for their determination in gifting hope and dignity to our children.  At the teams recent Centenary Dinner, shareholders and partners generously donated towards our Comprehensive Child and Family Support Programme serving 4500+ beneficiaries.  We thank you and welcome you to our CHOC family.  

 

Upcoming Events

CHOC Webinar

Assessing and addressing the sexual self of childhood cancer survivors, free webinar hosted by CHOC.

Register here

CHOC Walk up Sani Pass 

This year we welcome our 14th CHOC Walk Up Sani Pass in support of children and teenagers with cancer or life-threatening blood disorders, and their families.

Saturday 5 August 2023
Register here

CHOC Walk up Sani Pass 

This year we welcome our 14th CHOC Walk Up Sani Pass in support of children and teenagers with cancer or life-threatening blood disorders, and their families.

Saturday 5 August 2023
Register here

You too can make a difference!

Without CHOC, many children – particularly those from low-income households living far from treatment centres – would not adhere to the necessary but arduous treatment path.

CHOC has a proven ability to deliver sustainable solutions effectively and is an established brand endorsed by specialists. Our reporting on expenditure is detailed, accurate and we provide audited financial statements annually. We have demonstrated visible growth and have proved that we deliver results.

To make a difference in the lives of our beneficiaries, click here

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Our mailing address is:
CHOC Childhood Cancer Foundation
45 Homestead Road
The Avenues Office Park
Syringa Building
Rivonia
2128

Email:
[email protected]

Tel:
086 111 3500

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