Surviving Neuroblastoma, A Journey of Faith, Hope and Resilience
Meet Childhood Cancer Survivor, Candice Weber
In 1995, at just four years old, I knew I wanted to be an actress, singing and dancing around our house in Witbank. That same year, I began experiencing severe stomach pain, which led to numerous doctor visits with no answers. On my fifth birthday in October, still unwell, I was referred to a paediatrician in Johannesburg. Tests revealed a 12cm x 4cm tumour in my right adrenal gland, and I was diagnosed with stage 3 Neuroblastoma. With only a 10% chance of survival, my parents were devastated, especially with a newborn at home.
Ward 294 at Johannesburg General Hospital became our home for two years. The doctors and staff, including Sister Sadie, Dr. Bernard, and Dr. Rosie, provided exceptional care.
After months of chemotherapy, Prof Peter Beale successfully removed the tumour. A bone marrow transplant followed, involving aggressive chemo and weeks of isolation. It was a dark and challenging time, but I survived while many did not.
After returning home, I continued regular check-ups and blood tests. Thanks to the incredible specialists, my family’s unwavering love, and numerous prayers, I have been cancer-free for 24 years. Now an actress, I believe in the purpose of life and aim to encourage children and parents facing similar battles, reminding them they are not alone.
On this Mandela Day, we came together to honour the extraordinary life and legacy of Nelson Mandela, a beacon of hope and unwavering commitment to justice and equality. Mandela’s vision for a world where every individual is treated with dignity and respect continues to inspire us all. This month, we celebrated with our wonderful donors across South Africa.
Mandela Day is more than just a day of remembrance; it is a call to action. It encourages each of us to take small steps toward creating a more just and compassionate world. This year, across all our regions, we have dedicated our efforts to supporting and uplifting the lives of children and teenagers, reflecting Mandela’s belief in the power of youth to shape the future.
From our garden fairies and vibrant painting sessions to fulfilling our essential wishlist items, the joy and enthusiasm displayed by everyone involved has been truly heart-warming. It is through these collective efforts that we can ensure that each child and teenager has the opportunity to flourish and contribute to society.
We, the children, the teenagers, and their families, extend our deepest appreciation and heartfelt thank you to all our incredible supporters who have made a positive impact in keeping hope alive for our children and teens. Your unwavering dedication and contributions have truly made a difference and continue to inspire us every day.
Together, we will make a lasting difference and create a legacy worthy of Mandela’s extraordinary vision.
CHOC Winter Colour Tea
If you’re familiar with the Free State, you know how harsh the winters can be. However, on 8 June, the chill was replaced with warmth and a burst of color at the CHOC Winter Colour Tea held at Altissimo Guest House. Hanneke Lubbe from Hospice Free State, a cherished friend of CHOC Free State, delivered an inspiring talk on infusing color into life during challenging times. Hanneke, who lost her young son Henry to childhood cancer, shared her heartfelt insights.
Elmarie Lambourne, an Image Consultant from Dazzling Gem Image Consultant and Stylist, offered the attendees valuable tips on selecting the right colours and styles to enhance their wardrobes, tailored to their body shapes.
The event also featured exhibitions by Loka’Mor Bloemfontein and Mooiste Meisie Make-up, showcasing their clothing and makeup collections.
Advancing Early Detection of Childhood Cancer in South Africa
At CHOC, we are dedicated to raising awareness about the symptoms and Siluan Early Warning Signs (EWS) of childhood cancer through our Awareness Training and Education Programme.
Recently, a series of specialized training sessions were held for a group of nurses at the Greater Kokstad Clinic. The objective was to equip them with the knowledge to recognise the symptoms and Early Warning Signs of childhood cancer
Our mission is clear: early detection saves lives. By 2030, we aim to increase survival rates to 60% across South Africa, in line with the WHO Global Initiative for Childhood Cancer (GICC).
In pursuit of this vision, we have recruited 22 professional nurses from across the country to bring hope to communities and continue to grow.
Our Impact over the Past Year
Support CHOC and Secure Your Tax Benefit
Complete Your Section 18A Certificate Request Today
At CHOC Childhood Cancer Foundation SA, we are committed to making a positive impact in our community. Your support plays a vital role in sustaining our core services provided to children and teenagers with cancer or life-threatening blood disorders, and their families.
As we strive to expand our reach and amplify our efforts, we are reaching out to you with an important request. We kindly ask that you complete the respective form below with the information which we require to issue a Section 18A Tax Certificate, if you haven’t already provided us with this information.
By providing us with the necessary information, as per SARS requirements, you’ll enable us to effectively issue you with a Section 18A Tax Certificate, should your donation qualify for one.
In terms of Government Gazette Notice No. 48104 published on 24 February 2023, the SARS Commissioner has exercised the right under section 18A(2)(a)(vii) of the Income Tax Act to prescribe further requirements for tax certificates. The notice came into effect on 1 March 2023.
If you have made a donation to CHOC in your personal capacity or if you company, trust or school has made a donation to CHOC and would like to request a Section 18A tax certificate for a qualifying donation/s, please take a moment to fill out our S18A Request Form. If you are requesting for more than one company, trust, or school, please complete a separate form for each entity.
Kindly send the completed form/s to donations@choc.org.za. If you have any questions or require further assistance, please don’t hesitate to reach out to us at donations@choc.org.za.
Your dedication to our cause is deeply appreciated, and we’re here to support you every step of the way.
Ride Joburg with the CHOC Cows!
Are you ready to pedal with passion and purpose to make a difference in the lives of children and teenagers diagnosed with cancer or a life-threatening blood disorder? Join our Super Cycling Herd of dedicated MOOs for Ride Joburg 2024 and support CHOC Childhood Cancer Foundation SA as we raise much-needed MOOLA and awareness for this amoozing cause.
By participating in Ride Joburg, you’ll not only challenge yourself on an epic ride through the heart of Joburg but also contribute to a cause that truly matters. Together, let’s turn every mile into hope, strength, and smiles for these brave children.
Whether you’re an experienced cyclist or new to the road, we would be thrilled to have you in the herd. There are no limits when it comes to being a Cow, and we welcome riders of all levels to join in on the FUN.
All you need to do is:
1. Decide you want to be a Super MOO.
2. Enter Ride Joburg 2024.
3. Email Daisy and tell her you want to raise MOOLA.
4. Set up a Givengain fundraising page and choose the Ride Joburg Campaign.
5. Raise R6000 to receive the super AMOOZING Cow cycle gear.
6. Get ready to have some FUN in the SUN with the Super Herd.
Let’s ride together, raise funds, and make a MOOSIVE impact. Sign up today and be a part of something extraordinary at Ride Joburg 2024. Your journey with The Cows starts here!
For more information, email Daisy at Daisy@thecows.co.za.
Thank you to our PR and Communications Team
A Message from the HR Desk
Let’s take a moment to appreciate our incredible work and the talented individuals who make it all happen. Here’s to our PR/Marketing rockstars!
Thank you for your creativity, and strategic thinking ability to craft compelling narratives that resonate with our stakeholders. Your efforts have elevated our brand and built meaningful connections with our audience.
Your tireless commitment to storytelling, media relations, and stakeholder engagement has significantly impacted our organisation’s reputation and success.
Taryn, Talia, Jayde and Zama, we appreciate you!
Celebrate with us as we turn 45!
As CHOC commemorates its 45th anniversary, we reflect on the journey that has shaped us into the beacon of hope and support we are today.
Mandela’s visit in 1997:
Sadie recalls the day she met Nelson Mandela “That day he arrived an hour ahead of the scheduled time.
I had to take him on a shorter route of Ward 286 as he had problems with his knees, and I did not want him to walk too far. So, here I was showing him around and introducing him. I had not read up on the protocol, but he was wonderful. There was not a child in the ward that he did not stop to speak to or pick up. He had such an affinity for children. Parents and staff in the wards froze on the spot at seeing him”
He picked up from my accent that I was Irish, and he said, ‘Sister, what brings you here?’ and he was about to go on an official visit to Ireland.
So, we had a lovely chitter-chatter about that. I said, you’ve got to try Guinness.
I remember introducing Professor Janet Poole to him and he looked down at her and said, ‘Well, you should be in school.’ He had such a sense of humour.
Afterwards we were all so overwhelmed at the excitement of the day and meeting Mr Mandela. I think everyone who met him didn’t want to wash their hands, they wanted to keep that feeling and cherish every moment. Meeting Mr Mandela was an affirmation to keep focused, to keep the faith – his vision was to know that what you want to accomplish can be accomplished and legacy taught us that our aspirations are within reach.”
Together, we reaffirm our commitment to providing comfort, care, and support to children with cancer and their families, honouring the spirit of compassion and resilience that has defined CHOC for 45 remarkable years.
We will be hosting our 45th birthday event in November. If there are individuals or corporates that would like to get involved please contact Antonella.swanepoel@choc.org.za
In 1998 I was diagnosed with Germ Tumor Cell a form of cancer in the ovaries, this diagnosis came as a shock to my family because I was at a tender age of 12 years, now how can a 12-year-old be diagnosed with such a disease which most of the time such cancers are diagnosed in adult women who have given birth and here I am and haven’t started my period!
Ooops you are pregnant
It all began with some sharp pain and swelling on my right side just below my belly button, the swelling appeared as if I had an appendix, after taking many painkillers and some home remedies with no success finally it was time to visit the clinic, by then the pain and the swelling was getting worse. After some check-ups and tests the nurse said that I had been naughty and playing with boys cause my check-up showed ”balloon stomach ”and the urine test revealed that I was ‘pregnant’, ooh my mama got into a Mama Panther mode and demanded to see the doctor-manager or whoever the nurse is reporting to.
Hospital stays
We waited for the doctor and after he examined me he apologised to my mother, and immediately referred us to Sebokeng hospital for further tests, I was admitted on our arrival and stayed there for 2 weeks, during the hospital my mother said that the doctors haven’t told her what is wrong with me, therefore, she is going to ask them to discharge me. When we got home my mother’s employer contacted her private doctor at Mediclinic Vereeniging and in 2 days I was in his examination room and referred to Chris Hani Baragwanath Hospital, where I was admitted and diagnosed with a germ cell tumour within 2weeks. I had my surgery in December 1998, then January 1999 I was moved to the Pediatric Oncology Unit where I was so scared when I saw all the other sick kids, most of them had no hair on their heads, they looked thin, with somehow skin colour and all the machines that were beeping in this new ward.
Chemo, chemo and lots of chemo
My own journey of hair loss and somehow skin colour started by the end of January of the same year. I had 9 rounds of chemotherapy with many others to follow, I had 9 rounds of chemotherapy (9 months) with 4 surgeries in between. The treatment was tough, I remember the chemo side effects just like this morning’s breakfast, vomiting till I would feel like I am going to pass out, half of my beautiful long brown-black hair on my pillow and hat, and developing skin discoloration, mine looked like I was a purple Smurf.
CHOC made our hospital stays easier and much more fun, we would be treated to camps, lunch outings, birthday parties, presents, celebrities and cartoon figures. These were indeed fun times when one would feel normal and healthy, you could bet that we were not sick after each outing, the chats and the laughter when we got back to our ward where our family back home felt at ease too. I would get a weekend pass out from Thursday to Monday and then back to the hospital again, it was not easy as I was always sick and would come back before the end of the pass out. And yeah, the passing of other kids was the painful thing again, as much as the doctors and the hospital staff tried to be discreet about the news we would somehow find out and this would turn our stomachs upside down. And there are 2 deaths that are just locked in my memory, but that is a story for another time.
Real-world and recovery
I was declared cancer-free and discharged from the hospital in November 1999. My family was over the moon including myself, now I could not wait to get back to school the following year. January 2000, I went back to school, this was another journey that I was unprepared for, my hair was more like a newborn baby hair, still thin, and with skin discoloration. The worst of it was when my parents and teachers realised that I lost my hearing ability in my right ear, my sense of touch was not like others. This was now another fight on its own. Before I could get a hearing aid I learned how to lip read and had to learn to write and hold objects tightly or until I could feel them piercing through my hand. I had to these are some of the chemotherapy’s lifelong side effects.
Life was hard as most of the kids were scared to be around me, sometimes nasty kids would make fun of me, but I was under strict watch from my teachers who made sure that I was not bullied at school, and I took my daily medication. In 2003 I went back to the hospital because I had gallbladder stones… My family and I were scared that the cancer was back!! They were removed, and I went back to school after and continued to soldier on. It was fun and scary to be in the real world. Though I managed to pass primary last year and went to high school and completed my matric in 2005 I had to study 10 times harder than other kids because I had something called chemo brain where one forgets easily.
It took me years to stop worrying about relapsing and much effort to live my life freely and enjoy every given moment.
Today I am a qualified Social Auxiliary Worker and hold an End-user computing certificate.
Hello, My name is Zanele Mohlongo and I am a cancer survivor. This year I am celebrating 24 years of remission.
Nurses Day With Lancet
We just wanted to give you a huge shout-out to Lancet for the wonderful gifts that were handed out at the Paediatric Oncology Wards for Nurses Day!
To our nursing staff – your unwavering dedication, tireless service, and compassionate hearts make you true heroes.
Thank you to NCL for adding light to our homes!
Thanks to the remarkable funding from the National Lotteries Commission (NLC) our Plumstead and Sybrand Park CHOC Houses have received solar valued at R446,000. This funding is more than just an investment in infrastructure; it’s an investment in hope, health, and well-being. These panels ensure a reliable and sustainable power source, keeping the lights on even during load-shedding. Additionally, solar power reduces electricity bills and the carbon footprint, making the facilities more environmentally friendly.
As we celebrate this milestone at the Sybrand House, we extend our heartfelt gratitude to National Lotteries Commission South Africa and all our donors. Your commitment to our cause fuels our determination to create a brighter, healthier future for every child or teenager who has been diagnosed with cancer or a life-threatening blood disorder.
Hedley Lewis, CHOC CEO expressed how grateful we are for the funds received and how we can start to filter the “going green” theme throughout CHOC. Hedley Lewis says “The money which will be saved from this system will be utilised within the house, bringing down our monthly running costs.”
Advancing Early Detection of Childhood Cancer in South Africa
At CHOC, we’re committed to spreading awareness about the symptoms and Siluan Early Warning Signs (EWS) of Childhood Cancer as part of our Awareness Training and Education Programme.
Recently, we conducted specialised training for a group of dedicated Healthcare Professionals, including nurses and doctors. The focus was to equip them with the knowledge to recognise the symptoms and Siluan Early Warning Signs of Childhood Cancer.
Our mission is clear — early detection saves lives! By 2030, we aim to raise these survival rates to 60% across South Africa, which aligns with the WHO Global Initiative for Childhood Cancer (GICC). Therefore, we recruited 22 professional nurses from all over the country to convey hope to communities.
Last week together with the Northwest Department of Health, we trained several Healthcare professionals nurses and doctors on the early warning signs and symptoms of childhood cancer in Mafikeng.
Our aim is to increase the survival rates of children and teenagers with cancer in the Northwest Province using the IMCI principles.
Tribute to Mum Nomvula
Written for Mum Nomvula by our Chief Social Worker, Lawrence
Our beloved colleague, known to us as Mum Nomvula and to some as Mum Vigi, was genuine with all of us and true to herself.
We shared many happy and sad moments with her. She was a woman of her word, a straightforward talker who never held grudges.
Mum Nomvula was a true foot soldier in the childhood cancer community. She was strict, professional, and dedicated to serving the children and families affected by childhood cancer. Despite the challenges of public transport, she was the only person on the psychosocial support team to arrive at work as early as 6:00 a.m., ensuring that families arriving in the early hours or the night before received care.
She served with pride and dignity, her life centered around her love for the children and their families.
Beyond her professional role, Mum Nomvula was a mother, sister, mentor, and friend to us all. She could be both firm and friendly, making us feel safe in her presence while also playing a motherly role.
Her illness left the team devastated, and her absence at the annual social workers’ meetings was deeply felt, leaving a void that can never be filled.
In her final days, she was open and honest about her medical condition each time we reached out. She knew she was about to depart from this earth and often spoke about her destiny, assuring us of her love for the CHOC team.
May the fighting, genuine, reprimanding, and committed spirit of Mum Nomvula rest in peace.
Her loving spirit will forever live with us. We love you, Mum Nomvula.
Rest well, Chawekazi.
Comrades 2024
Thank you to our HR Team
Behind every successful organisation stand the unsung heroes who keep the wheels turning — the Human Resources (HR) team. Our HR team works tirelessly to ensure the well-being of every team member, seamlessly handling everything from policy enforcement to office morale. They are the backbone that supports our workplace.
A heartfelt thank you goes out to TK, Ntombi, and Lungile. Your dedication and hard work do not go unnoticed. You ensure that our work environment is not only functional but also enjoyable and supportive. From onboarding new employees to managing benefits and addressing concerns, you are there every step of the way, ensuring that our organization remains a great place to work.
Thank you, for your unwavering commitment and the positive impact you make daily. Your efforts are truly appreciated, and we are grateful for everything you do!
Celebrate with us as we turn 45!
As CHOC commemorates its 45th anniversary, we reflect on the journey that has shaped us into the beacon of hope and support we are today. It all began with the vision and dedication of individuals like Prof Lorna MacDougall, whose pioneering spirit laid the foundation for our organisation.
In the mid-1970s, Prof Lorna MacDougall, a compassionate Scottish doctor with extensive experience in East Africa and the USA, arrived in Johannesburg.
Recognising the need for specialised care for peadiatric hematology and oncology patients, she spearheaded the establishment of a dedicated unit at Johannesburg Hospital in 1979.
This unit, initially situated at the old TMI, later became known as the Children’s Hematology Oncology Clinic – affectionately abbreviated as CHOC, thanks to Prof MacDougall’s initiative.
The formation of CHOC in 1979 marked a turning point in the fight against childhood cancer in South Africa. Inspired by Prof MacDougall’s vision, a group of parents, including Ken Eaton, Winton Woodruffe, and Giovanni Vasta, banded together to provide support and advocacy for children battling cancer.
Despite facing challenges, such as legal restrictions on funding, the unwavering dedication of CHOC’s founders and supporters ensured its continued growth. Notably, in 1981, CHOC received a significant boost when Johannesburg Hospital selected it as the beneficiary of funds raised at a prestigious event, signaling widespread recognition of its vital role in the community.
Amidst the trials and triumphs, two individuals emerged as pillars of CHOC’s mission: Julian and Sadie Cutland. Their steadfast commitment and tireless efforts propelled CHOC forward during its formative years and beyond, ensuring that children and families affected by cancer received the care and support they desperately needed.
As we celebrate our 45th anniversary, we extend our deepest gratitude to Prof Lorna MacDougall, the founding parents, and all those who have contributed to CHOC’s legacy of hope and healing. And to Sadie Cutland, whose unwavering dedication continues to inspire us, we express our heartfelt appreciation for her invaluable contributions to CHOC’s mission.
Together, we reaffirm our commitment to providing comfort, care, and support to children with cancer and their families, honoring the spirit of compassion and resilience that has defined CHOC for 45 remarkable years.
Join us at one of our upcoming events
CHOC Walk up Sani Pass
This year, we eagerly embark on our 15th CHOC Walk Up Sani Pass, standing united with children and teenagers who bravely face cancer or life-threatening blood disorders, alongside their families.
Heartfelt gratitude to all who dedicate this day, every step, to such a noble cause. We look forward to having each of you join CHOC KwaZulu-Natal Region as we ascend Sani Pass, one step at a time.
Registration is R400.00 for adults and children over 16 years and R300 per child under 16 years. Includes a T-shirt and a meal.
In a small hospital room, a five-month old child lay, surrounded by worried parents. The child’s stomach bore the weight of a rapidly growing mass on its right side. The parents had noticed the change and rushed their little one to the hospital.
The doctors performed a biopsy and running tests. Their suspicions were confirmed: a Malignant Rhabdoid Tumour had taken root in the child’s abdomen. It was a rare and aggressive form of cancer.
The parents held strong beliefs in traditional medicine and hoped it would aid their child’s recovery.
They pleaded with surgeons to remove only the tumour and stabilise their little one.
Despite being informed of the risks, they committed to taking responsibility for healing their child post-surgery. The mother, a traditional healer, and the father, a pharmacist, believed they were bewitched and that their child’s condition was a result of witchcraft.
Following the successful tumour removal, a grim reality emerged. The child not only had the tumour but also suffered from a severe infection affecting multiple organs — the brain, liver, kidneys, and heart. His condition deteriorated rapidly, leading to sepsis in the lungs and blood, ultimately resulting in cardiac arrest. Despite resuscitation efforts, the child’s organs failed to fully recover, and the doctors concluded that further interventions would be futile.
Tragically, the child passed away in the critical care ward. The devastated family had hoped their traditional methods would help him recover. They received psychosocial support and bereavement counselling during this difficult time. The father expressed gratitude for the compassionate care provided by CHOC, particularly from the Psychosocial Team. He pledged to stay connected with other families affected by childhood cancer, navigating life after loss.
This heartbreaking case underscores the critical importance of recognising the Early Warning Signs of Childhood Cancer. When symptoms persist, seeking prompt medical attention can significantly improve outcomes and potentially save lives. CHOC offers valuable resources and information to empower parents and caregivers in identifying suspicious symptoms and seeking timely medical help.
To learn more about the Childhood Cancer Early Warning Signs and how they can make a difference, visit CHOC’s website: Childhood Cancer Early Warning Signs.
Early detection can be the first step towards effective treatment and better outcomes for children and teenagers facing cancer.
I’m Abigail Evert, a 25-year-old Grade 1 English teacher from South Africa and I proudly call Budapest my home. Since the end of 2021, I’ve been teaching through the Bilingual Program in a charming school outside of Budapest. Let me tell you, it’s been quite an adventure!
One of the things I cherish most about my job is the opportunity to open up the world to my students. Through the Bilingual Programme, we’re not just teaching lessons; we’re sharing cultures, traditions, and experiences. It’s a beautiful exchange that enriches both teacher and student alike.
From Halloween to St. Patrick’s Day, Pancake Day to Valentine’s Day, we’ve been on a whirlwind tour of celebrations from around the globe. But one event holds a special place in our hearts at our school: Flip Flop Day. Now in its second year, this tradition is more than just a fun day; it’s a symbol of hope and solidarity.
It all started with my dear friend Jessica Tait, who, despite facing her own battles with childhood cancer, shared the magic of Flip Flop Day with her students at her school in Budapest 4 years ago. Inspired by her courage and determination, I knew I had to carry on the tradition.
And so, with enthusiasm and a heart full of purpose, I asked my fellow Bilingual teachers to join me in supporting the CHOC, an organisation dedicated to helping children and teenagers facing cancer and life-threatening blood disorders.
We sold stickers on Flip Flop Day, wore blue to show our support, and educated our students about the incredible work of the CHOC. The responses were overwhelming as together, across six classes, we raised R4000!
But more than the money raised, it was the spirit of unity, love, and compassion that filled our school that day. From the excitement of students coming to school in flip flops to the heartfelt conversations about making a difference, it was a day we’ll never forget.
So here’s to Flip Flop Day, to Jessica, to every teacher who joined in, and to the beautiful souls who remind us every day that a little kindness goes a long way. As we eagerly await the next chapter in 2025, we’ll continue to educate our children on all that happens in the World.
And to my fellow teachers – Jessica, Jené, Devon, Nqobile, Victoria, Lana, Ashley, Jessie, and Zahra – thank you for your unwavering dedication and for making a difference in the lives of our students and beyond. You’re all an inspiration and someone that our classes look up to.
With love and gratitude,
Abigail Evert
Cape Town Cycle Tour and Two Oceans Marathon
We had a fantastic turnout for both events this year. At the Cape Town Cycle Tour, over 20 riders hit the streets for CHOC, gaining attention as Ethan Simpson completed the race as the youngest person ever to ride a unicycle. Their efforts raised over R65,000 for our cause, showcasing their amazing dedication always.
At the Two Oceans Marathon, we had 10 Cows running the Ultra and 30 participating in the half marathon. While awaiting the final fundraising totals, we estimate around R40,000 raised from entry sales and individual fundraisers. If you would like to be a part of this AMOOZING race with the herd in 2025 send Daisy an email to be added to the waiting list as entries sell out faster than Gerda Steyn’s Two Oceans Record!
In other meadows
A group of brave cows took on the challenge of the 5km Goxhill Lake Cold Open Water Swim in the KZN Midlands. Despite the chilly water, our crazy moos powered through with big smiles on their faces.
Meanwhile, at the aQuelle Tour Durban, our herd was out in full force, representing across all age groups. Our dedicated Cow Sweeps ensured that even the last two lady cyclists made it home safely in the scorching heat.
Eli, who cycled with his mom Kjersti, dedicated his ride to his big brother Axel, a childhood cancer survivor, and for his auntie and all the children at CHOC. With his bestie, Fezile Bhengu, cheering him on, nothing was going to stop him.
A big thank you to all the schools who manned the many water stations on route. Your spirit and encouragement kept the cyclists going, super job!!
Special thanks to CMH Nissan Ballito for their incredible support at the Umdloti water station, keeping our herd hydrated and motivated!
Congratulations to each and every one of you for your incredible efforts, for representing the Herd and keeping more than hope alive.
Coming up
The Comrades Marathon is happening on the 9th of June 2024 and our herd is bigger than ever!
Currently, we have 320 runners signed up, having raised over R900,000 to date. With three weeks remaining for runners to reach their R6,000 targets and qualify for the CC seeding batch, we anticipate surpassing the million mark very soon. Our target for 2024 is R2million and we know our super herd will do their utmost to achieve this! We are always looking for volunteers to assist at our two water stations on race day so if you are in and around Durban or Pietermaritzburg and want to join in the fun and cheer the runners on, pop Daisy an email today!
It all began with a simple need: a kettle, some toys for the little ones, and a fridge. The modest origins of CHOC belie the incredible journey that followed, spurred by a handful of mothers pondering, “What can we do?”
Wards 294 and 286 at Charlotte Maxeke Johannesburg Academic Hospital stand as havens for children diagnosed with cancer and blood disorders. Picture a typical Monday morning in 2020: bustling wards, dedicated staff, and a visiting clown crafting whimsical balloon shapes for the young patients.
These spaces burst with vibrant hues. Caregivers have their own sanctuary, equipped for brewing comforting beverages or preparing special meals. Despite the clinical setting, CHOC has infused the wards with warmth and cheer, transforming them into inviting sanctuaries. Contrast this with 1979, when the children’s cancer ward transitioned from the Transvaal Memorial Institute to the newly minted Johannesburg General Academic Hospital, now known as the Charlotte Maxeke Johannesburg Hospital, characterised by its clinical austerity.
But that was just the beginning of a remarkable journey…
To spread hope, follow us on the social media platforms below
Our mailing address is:
CHOC Childhood Cancer Foundation
45 Homestead Road
The Avenues Office Park
Syringa Building
Rivonia
2128
Glory’s childhood was marked by curiosity and determination. As she recalls, “I have always been an intelligent, healthy, and extroverted child who enjoys meeting new people.” Her zest for life and love for learning set her apart from an early age.
Family First: Family is at the core of Glory’s world. Her father, strict but supportive, guides her through schoolwork, while her fun-loving mother engages in playful moments with Glory and her siblings. Their bond is unbreakable — a source of strength during both ordinary days and unforeseen challenges.
A Painful Discovery: In January 2022, Glory’s life took an unexpected turn. Excruciating stomach pain led her to the hospital, where scans revealed a lump in her kidneys.
Surgery became inevitable. The tumour grew rapidly, causing discomfort akin to pregnancy. But Glory’s resilience shone through.
A Battle Begins:June 2022 brought both relief and heartache. Successful surgery removed the tumour, yet the doctor delivered the bad news: traces of cancer cells were found in Glory’s kidney, lungs, and liver. The path ahead was daunting — chemotherapy and radiation awaited her.
“My mother cried every day,” recalls Glory. “But I had faith in the doctors. They worked tirelessly to restore my health.” Her unwavering spirit became a beacon of hope for her family.
A Safe Haven:Glory’s journey led her to the CHOC House, a sanctuary for children battling cancer and blood-related disorders. Here, she found solace — a place that felt like home. Welcoming staff, a comfortable bed, nourishing meals, and camaraderie with fellow families eased her burden.
“My arrival at the CHOC House was very pleasant,” says Glory. “I knew I wasn’t alone in this fight”.
A Dream Unfolds:Despite her trials, Glory remains steadfast. As a library prefect in school, she immerses herself in books, dreaming of a future where she can make a difference. Her aspiration? To become a doctor — one who heals, comforts, and brings hope to others.
Glory Nanungu’s story reminds us that courage knows no bounds. In the face of adversity, she stands tall, a testament to resilience and the power of community. Let us rally behind her, celebrating her journey and believing in brighter tomorrow.
Glory’s journey continues, and we are honored to share it with you.
The National Department of Health (NDoH) urges health care workers and communities to be aware of the SILUAN Early Warning Signs for Childhood Cancer. This will allow for early detection and effective management of childhood cancers which will result in better outcomes.
The ICCD theme for the next 3 years is Addressing Challenges of childhood cancer.
2024 Unveiling the challenges,
2025 Inspiring action,
2026 Demonstrating impact.
2024 is about the collection of challenges and inequalities encountered by those navigating the complex childhood cancer landscape in South Africa.
We are honoured to listen to the Heads of Paediatric Oncology Units in SA as they share their challenges in their regions with us. During the year we will keep this theme top of mind as we advocate for children and teenagers who have been diagnosed with childhood cancer to keep more than hope alive. We call on you to share your challenges and be a voice for childhood cancer.
The annual aQuelle 8-mile charity event consistently outdoes itself, thanks to our incredible team of swimmers—the CHOC Cows—who participate as a united herd. These dedicated swimmers come from all corners of the country, aiming to enjoy two days of camaraderie while raising funds.
The 8-mile swim is no small feat; it demands resilience and determination. Yet, amidst the physical strain, not a single complaint is heard. Some swimmers even go beyond the charity event, swimming an additional 8 miles. A special mention goes to Jason Raath, who dons a cow suit, races to the starting line, swims the distance, and then repeats the entire process.
Our youngest swimmer, Nthoesane Siyazingca, proudly represented CHOC. Jayde Fouche, our national CHOC Daisy, and Iris Varty, our Durbs Daisy, also participate. Jayde’s dedication during Georgina Bains’ birthday week touched our hearts. The CHOC Cows embody a passion for children with cancer, and we’re honored to have Jo-Anne Barnard, an Accountant and top fundraiser, swimming for CHOC. Over the years, Jo-Anne has raised an impressive R800,000 for this cause.
Each swimmer radiated goodness and kindness, channelling their love for open water events to raise awareness for children battling cancer. We take immense pride in our CHOC Cows and appreciate their unwavering support
Did you know that Nutrition Week is celebrated each year during March, and focuses on the importance of making informed food choices and developing sound eating and physical activity habits.
Food parcels form part of CHOC’s support programmes. It is a temporary provision of assistance for families in a desperate situation who cannot provide for their family’s basic needs.
A CHOC recommended food parcel makes provision for weekly / monthly meals for a family as a form of “social relief of distress”. It is recommended by and based on the psychosocial assessment of a social worker / counsellor / social auxiliary worker.
In some cases, food vouchers are distributed instead of food parcels.
Food parcels are also distinguished from food donations which are handed out to children, teens, and families in the form of e.g., packed lunches (“padkos”).
In the 2022 – 2023 Financial year 986people benefitted from these packed meals.
We’re thrilled to share the success of our recent two-day training workshop held on February 13-14 for managers across various departments within the Northwest Department of Health. This event attracted 26 managers from diverse divisions and subdistricts within the Bojanala Department of Health, including cluster managers, School Health Nurses, Regional Training Centre managers, District Pediatricians, Local Area Managers, Outreach Teams Managers, and more.
During the workshop, a consensus emerged regarding the inclusion of Early Warning Signs of Childhood Cancer in the IMCI manual in Gauteng. It was unanimously agreed that the template could significantly aid Northwest Province in preventing the oversight of children who may be at risk of cancer.
Following the workshop, our efforts extended to a targeted training initiative aimed at Community Health Workers across the subdistricts in Bojanala. Led by our dedicated CHOC Community Trainers, Sylvia Mdluli (a retired Peadiatric Oncology Nurse) and Zukiswa Mukwevho (a Childhood Cancer Survivor), we successfully reached 204 Community Health Workers in four subdistricts. Notably, this is just the beginning, as there are a total of 1200 Community Health Workers in the district. We are grateful for the commitment of their managers to ensure that all workers receive training on the SILUAN Early Warning Signs of Childhood Cancer.
This collaborative endeavor underscores our shared dedication to improving healthcare outcomes and ensuring the well-being of children in the Northwest Province.
Together, we can make a significant impact in identifying and addressing childhood cancer early on.
If you would like to become a volunteer trainer for CHOC please contact Rila Mabasa on 011 326 1717
Stay tuned as we take all that small change given to make a big difference! It has been an extraordinary year, and we’re eagerly anticipating sharing our achievements with you
For any information about Flip Flop Day, please email us here!
Welcome back to everyone as we embark on a new year!
I hope each of you enjoyed a fantastic festive break and you are ready to face the fresh challenges that 2024 brings.
Reflecting on the past year, CHOC has successfully achieved many of the goals we set for ourselves.
The continuous effort against cancer remains a central focus of our mission, and each individual at CHOC plays a crucial role in addressing this challenge.
CHOC’s remarkable impact, surpassing mere hope, is attributed to the collective efforts of our Human Resources, including our dedicated staff, volunteers, donors, and the parents who contribute to our cause. With confidence, I believe that our collaborative efforts will exceed the expectations we’ve set for ourselves in 2024.
A heartfelt thank you to each one of you for your unwavering dedication and contributions.
Yours in Hope,
Eugene
Journey of Phenyo and His Mother, Dipuo
Story from our CHOC House in Bloemfontein
In June, Phenyo confronted a significant shift in his life when he was diagnosed with a cancerous brain tumor. Originally from Galeshewe in Kimberley, Northern Cape, he underwent surgery at the Nelson Mandela Children’s Hospital in July.
Throughout this emotionally demanding period, his mother, Dipuo, consistently stood by his side, offering unwavering and heartfelt support. Following the surgery, Phenyo was transferred back to Robert Mangaliso Sobukwe Hospital in Kimberley to commence his radiation treatment, highlighting the depth of their connection.
However, the required treatment was not available in the Northern Cape, demanding Phenyo’s journey to Universitas Annex Hospital in the Free State. The nature of radiation being an outpatient service presented an additional challenge – finding secure accommodation for the next six weeks.
It was during this time that they learned about CHOC House Bloemfontein, a compassionate haven providing not only free accommodation but also essential transportation support to families in need.
Upon arrival, Dipuo, initially overwhelmed with anxiety, found comfort in the warm embrace of the CHOC House staff. To her relief, she discovered that all services at CHOC are offered free of charge. Settling into their temporary home seamlessly, Dipuo actively engages in various activities designed for parents, cultivating a profound sense of community and support.
Presently, Phenyo’s treatment progress is going well, and our dedicated staff remains committed in ensuring the emotional well-being of the entire family during this challenging time.
Discover the Impact of 13 CHOC Houses Across South Africa
Supporting Families in Their Cancer Journey
As the new year begins, patients and their families returned to the 13 CHOC houses located on eleven properties across South Africa. These houses are situated in close proximity to tertiary hospitals with Pediatric oncology units. Each house has dedicated staff augmenting the treatment, by providing our families with nutritional meals, safe environments, and a parent-to-parent support system.
All benefits are free, regardless of a patient’s and their family’s background. The treatment journey is stressful, and our donors support us to alleviate the financial burden for families undergoing this challenging cancer treatment.
If you wish to learn more about the houses, click here for their addresses.
Awareness Update
What to expect in 2024 from our Awareness and Education team
Join us on an impactful journey with CHOC’s Awareness Training and Education Programme.
The Sibanye Platinum Mine training and awareness project in Bojanala District, Northwest has officially started. In December we met with the Regional Training Centre [RTC] of Bojanala District Department of Health to plan the rollout of the project. The RTC is the custodian of all training interventions within the Department of Health. In January, 23 managers representing all five sub-districts and programmes were trained and oriented on the work that we do.
These included cluster managers, School Health Nurses, Regional Training Centre managers District Pediatrician, etc. Everyone warmly welcomed the programme and there was a unanimous commitment to open more doors for training at the facility level. The next step in the plan is to train the trainers.
Up to now, our ATE Programme has reached nearly 200 Health Care Professionals in three different Provinces: Mpumalanga, Gauteng and Northwest.
Our training supports the Global Initiative on Childhood Cancer [GICC] goals, which is to reduce the suffering of children with cancer and achieve a cancer survival rate of at least 60% by 2030.
CHOC Meeting with Managers of Different programs in the Department of Health in Bojanala District [December 2023]
CHOC Community Trainer, Brenda Herbert, training Department of Health Managers in Northwest
Here’s an exclusive invitation: become a volunteer trainer for CHOC! Contact Rilaveta Mabasa at
011 326 1717 or email Rilaveta.mabasa@Choc.org.za to embark on this journey with us.
Above: CHOC Community Trainer, Sylvia Mdluli, training Enrolled Nurses in Chiawelo Clinic, Soweto
Together, let’s make a difference and light up the path to a brighter future for our future generations!
To read more about the Siluan Warning Signs of Childhood Cancer, click here
Flip Flop Day 2024
Join us on Friday the 23rd of February to flip for childhood cancer
Every February, Flippie makes his grand entrance, and it’s time to get the whole of South Africa on their feet—well, in their flip flops! Embrace the sunny vibes, make a difference, and grab a Flip Flop Day sticker for just R10. Stick it on and wear your flops on Flip Flop Day, which falls on Friday, 23rd February 2024.
Teaming up for something awesome, you can buy your sticker at your nearby PNA or Tekkie Town. Don’t forget, you can also visit www.choc.org.za or swing by your local CHOC Regional Office to get in on the fun.
Need more details? Simply send an email to flipflopday@choc.org.za. Plus, every sticker sold is a cool way to support children and teens who have been diagnosed with childhood cancer!
Ready to flip for a cause? Let’s flip for CHOC!
Financial Year End – Tax Season
What is a Section 18A and how does it benefit you
Did you know that by making a donation to CHOC, you are not only helping us keep hope alive for children and teenagers living with cancer, but you are also able to benefit from your donation?
CHOC is registered as a Public Benefit Organisation and has been approved to issue Section 18A certificates in terms of Section 18A of the Income Tax (Act 58 of 1962). This means that if you, as a taxpayer, or your company, make a bona fide donation in cash or in kind (material assets), this qualifies as a tax deductible expense. However, the donation cannot exceed 10% of taxable income.
The South African Revenue Service (SARS) determines a bona fide donation to be “a voluntary, gratuitous gift disposed of by the donor out of liberality or generosity, where the done is enriched and the donor impoverished. There may be no quid pro quo, no reciprocal obligations and no personal benefit for the donor. If the donee gives any consideration at all it is not a donation. The donor may not impose conditions which could enable him or any connected person in relation to himself to derive some direct or indirect benefit from the application of the donation”.
This means that income received for the sale of merchandise, entry fee to participate in an event or campaign, the purchase of an auction item or the sponsorship of an event do not qualify for a Section 18A. However, CHOC is able to send you a Social Economic Development letter to the value of the funds paid over to CHOC.
How do you get your Section 18A Certificate?
Make your cash donation if you haven’t already.
Download our Section 18A Request Form here. For donations made via GivenGain or our secure giving platform on our website, simply tick the appropriate box on the form.
Note: Section 18A Certificates can be issued for in-kind donations on receipt of supporting documentation required to verify the cost of the in-kind donation. If items are purchased from a supplier the receipt and invoice will be sufficient. If items are donated from the company’s stock, then an invoice or supporting document reflecting the cost price will be required. The certificate will be issued with the total amount less VAT. These documents can be submitted with the Section 18A Request Form mentioned above.
All queries regarding Section 18A Certificates, including requests, can be sent to donations@choc.org.za.
CHOC and Socio-Economic Development
In order for your donation (both in-kind and monetary) to qualify for SED points you will need a letter from CHOC acknowledging when the contribution was received as well as a confirmation letter confirming that our beneficiaries are 75% Black (or more). CHOC will provide you with a competent third-party verification from our Auditor, as well as a Sworn Affidavit, issued on the Department of Trade and Industry’s required template.
Thank you for your support and for believing in the work that CHOC does.
A Decade of Making Waves
10 Years of The CHOC Cows Swimming the aQuelle Midmar Mile
In the picturesque province of KwaZulu-Natal, a unique herd emerged in August 2013 with a mission to make a difference.
The KZN Herd of The CHOC Cows was founded, and little did they know that their first event in 2014, the aQuelle Midmar Mile, would mark the beginning of a decade-long journey filled with passion, camaraderie, and impactful fundraising.
Dressed in distinctive cow prints, just over 30 swimmers made a splash at their inaugural Midmar Mile. Their presence was not only a visual spectacle but also a symbol of their commitment to raising funds for children with cancer. The bovine-inspired swimmers caught the attention of onlookers, leaving an indelible mark on the event.
As the years unfolded, The CHOC Cows of KZN continued to grow their herd, both in numbers and impact. Each year, the aQuelle Midmar Mile became more than just a swimming event; it transformed into a symbol of hope and support for those battling cancer. The community rallied around the cause, and the cow-printed swimmers became synonymous with the spirit of giving.
Fast forward to the present, and The CHOC Cows of KZN are gearing up for their 10th Dam Crossing. The journey from a modest herd of 30 to a formidable force in fundraising has been nothing short of remarkable. The commitment of these swimmers to don their cow prints year after year, braving the waters of Midmar Dam, speaks volumes about their dedication to the cause.
Over the past decade, The CHOC Cows have become a beacon of inspiration, raising funds that directly impact the lives of children battling cancer. The money raised goes towards vital initiatives, such as transport to and from treatments, psychosocial support for families, housing during treatment, food parcels and most importantly creating awareness about childhood cancer.
As the 10th Dam Crossing approaches in just three weeks, the anticipation is palpable. The KZN Herd of The CHOC Cows is not only celebrating a milestone in their swimming journey but also a decade of making a meaningful impact on the lives of those in need. The cow print swimmers, once a small group with a big heart, have become a symbol of hope, resilience, and the power of community.
In a world often filled with challenges, The CHOC Cows of KZN remind us that simple gestures, like swimming a mile in cow print, can make a significant difference. Their story is a testament to the enduring spirit of giving, proving that when a community comes together with a shared purpose, they can create ripples of change that extend far beyond the waters of Midmar Dam.
To get involved with The CHOC Cows, please contact Daisy on daisy@thecows.co.za or visit www.thecows.co.za.
To spread hope, follow us on the social media platforms below
Our mailing address is:
CHOC Childhood Cancer Foundation
45 Homestead Road
The Avenues Office Park
Syringa Building
Rivonia
2128
